Hello, My name is mindy and im the mother of a beautiful boy named alex im also a scared and confused parent. Im on the internet searching for help my son has...
Dear Mindy, I am so sorry to hear about little Alex! My Nick was diagnosed when he was 16 (he is now 17) and after a splenectomy last March has done very well....
Marlene M Pritchard
opca@...
Apr 1, 2002 7:46 pm
1477
Dear Mindy, I'm so sorry to hear about the diagnosis of your little Alex. We understand how overwhelming it is to deal with any type of illness with a young...
Hi Mindy, I am so sorry to hear about your Alex but I hope you have come to the right place. Our Ben (11) was diagnosed a year ago so we know exactly how you...
Thank you all so much for your emails it really helped. I am so glad i found this group i really need some support right now. I was wondering how i can...
Mindy, This group has been a life saver for most of us, I think. I'm Emily, I was diagnosed with Evans when I was 21, and I'm 24 now, and pregnant, and still...
Emily, How's the pregnancy going? I think of you and pray for you often. Marlene On Tue, 02 Apr 2002 00:14:55 -0800 "Emily Gruszka" ... ...
Marlene Pritchard
opca@...
Apr 2, 2002 12:47 pm
1482
Dear Mindy, This site is of great help to many of us , both for support , information and sometimes the need to unload. As the mother of a child who has had a...
Marlene, So far so good...I have had a really easy pregnancy. I'm at about 6 months, and the baby is in the 70th percentile. I'm feeling fine, and I started...
We have a young boy in England who has received successful treatment for severe combined immunodeficiency (SCID) - I emailed Great Ormond Street Hospital...
Hello everyone, This is Mindy (mom to alex) we just got released from the hospital. He was admitted on sunday he was bleeding from his mouth the bleeding...
Hi Mindy, I'm so sorry to hear about Alex and his recent problems. I know how scary it is, especially when they are bleeding. I will keep you all in my...
lnalou@...
Apr 12, 2002 3:04 am
1487
Dear Mindy, I am so sorry Alex is having such a rough time. I hope the ivig does the trick. In the meantime, I will be praying for all of you. Marlene On Fri,...
Marlene Pritchard
opca@...
Apr 12, 2002 10:57 am
1488
Dear Mindy, Sorry to hear Alex is having a tough time of it. We will keep you all in our thoughts and prayers and hope the ivig does the trick. Heather ... ...
Hi Mindy, My heart goes out to you. My daughter is almost 6. I have been dealing with her having Evans Syndrome since she was 2 mos. old. It is very heart ...
Hi Mindy, We do know how scary this nasty illness is to deal with, especially with such a little one! I'm glad to hear Alex has been released from the...
Mindy, I am going through the same concerns with my son Aidan. He is 15 months old and was just diagnosed with Evans Syndrome one week ago. Since then, I have...
Hi everyone thank you for all the emails!! It really helps. Alex is doing okay he still has a viral infection We will find out his counts on Wednesday he has a...
Mindy, I know you've had a lot of responses and support from the group (including Shari who's my wife). I'll throw in my 2 bits. We were exactly where you are ...
Hello everyone! Alex went back to the hospital again this time for a bad nose bleed i went in the office and his platlets were at 4000!! His body distroyed the...
Hi everyone!!! Finally a place where I can talk to all of you about Evans syndrome and my son Jason who was in remission for 12 years, so there is hope that...
Dear Laurie and group, Very interesting...obviously, the idea of a long remission is a wonderful one, but I was struck by some of your other information as...
punstoys@...
Apr 20, 2002 12:35 pm
1497
Hi Shelly: Thanks for your E-Mail. So you must be from PA, so am I. When you said Penn State and your son went there I thought that you were from PA. I...
Hi everybody, My name is Susan and I was diagnosed with Evans Syndrome when I was fifteen. At the time I didn't want to listen to what the doctor had to tell...
... what ... Hi Susan and group: I am a new member. My son was diagnosed with Evans at 9 and had a lot of bouts with it until 15. He went into remission for...
Just wanted to let you know that I was diagnosed with Evan's at 15 years old (i'm now almost 33 yrs old) and have been in remission for about 15 years now. I...
Hi Susan, My name is Emily, and I was diagnosed with Evans when I was 21. I'm 24 now. I've had some strange circumstances, but my last bout with Evans was ...
i am new to the list and would appreciate any information i could get on evans. my boyfriend was diagnosed at the age of 19 but had ITP at 13. he is now 26...
Hello group, I am also a new member. First, I just wanted to say that I have been reading all of your e-mails and they have all been extremely helpful. Two...
Kim--My husband is 35 and was diagnosed in 1999 with autoimmune hemolytic anemia and in 1997 he had ITP. Thus far, he is in remission for the past 2 years and...
