Dear Paul, If we can't reach out to each other when we need it who else could possibly help or understand ? We haven't had any nosebleeds for awhile but they...
Dear Shelly, Torn and exhausted would be more like it ! I can only hope things quite down for you soon, and try to keep healthy yourself, my best and prayers...
Dear Friends, We are starting another treatment, Paul's goal is to limit his time spent in the hospital so, since we aren't getting much bang out of the IVIG...
Dear Emily, For me I LOVE hearing the good news , if if isn't us , I sure hope someone else in this group is having some. I am happy to hear you are doing well...
Hi Shelly! I love your answer to stress...just say the heck with it and go out and buy a new car! You go girl!! LOL Have a great weekend! God Bless, Debbie ...
Hi Emily, Good news will never depress us!! We all need to be able to vent and share our frustrations, but we also want to hear about all the healthy and...
Dear Betty, Much success with Paul's new treatment. I don't have any words of wisdom...just wanted you to know your family remains in my prayers. Debbie ...
Dear Lou I am from Montreal, Quebec and have been to Quebec city many times since we are close by. I am sure you will have a lot of fun and new adventures at...
Dear Emily I am so delighted that your pregnancy is going well. Boy you sure deserve all the blessings and speaking for myself they say misery loves company...
Dear Betty I can sure appreciate Paul's wish to spent less time in the hospital. My son Andrew never seemed to do well on IVIG it seemed to flare up the wrong...
Just wanted to share that I hit the 2 month mark since my spenectomy and my counts are all holding. I pray this was my answer and the end of my problems....
Thanks for all the notes regarding Nathan. He's not on any treatment so far. We go back to hospital on Tuesday for counts - Nathan's teacher spoke to my wife...
Dear Lynda, First of all I admire your strength and am wishing you all the best with Andrew's bone marrow trasnplant. If the PM6 doesn't work, the Rituximab...
We all have to find joy wherever we can, today, mine will be that I don't live in Afgahnistan! Thanks Lynda! :) I'll be praying for you and your son...I have...
Hi Brenda, Congratulations!! I'll hit the 2 month mark tomorrow with my splenectomy and my counts are all holding as well. I certainly hope this will be...
Hi Lynda and Betty, Rituximab is being experimented in France since some time. The success of the treatment is variable. It's effect appears to be more...
Hi there, My mind is a blank today, but I know that one of you out there has a son with Evans who also has antiphospholipid problems...could you please email...
lnalou@...
Feb 10, 2002 3:42 pm
1443
Hi Lynda, Just wanted to thank you for your letter. Quebec was wonderful...and it was fun using my French again...I grew up speaking mostly French til I was...
lnalou@...
Feb 10, 2002 3:47 pm
1444
Dear Lou, My son, Nick, has Evans with antiphospholipid. I have been reading posts for the last few weeks but not posting in return. I have been excited about...
Marlene Pritchard
opca@...
Feb 10, 2002 11:15 pm
1445
Hi Lou I'm glad your trip to Quebec was a good one and that your child stayed well. We were due to go in today for the transplant but it has been postponed ...
Hi All, Ben's numbers are still on target. We're counting our blessings. We've been tracking the onset of puberty, to ensure no ill effects from the ...
Courtney, I am so glad things are going well for you! Keep up the positive attitude! Marlene Well hello everyone, I know that it has been a while but college...
Marlene M Pritchard
opca@...
Feb 11, 2002 8:59 pm
1448
Brenda, Fantastic! The decision to go with the splenectomy is controversial but it has helped many. Nick is almost to his first anniversary (March 15) and has...
Marlene Pritchard
opca@...
Feb 11, 2002 10:13 pm
1449
Hi Mark I have heard about Hashimotos a friend of mine has it and has to be on medication all the time. It means that the body is actually allergic to the ...
Dear Lynda, I have been praying all week, and having my staff pray as well, for Andrew. The decision to have the transplant was a really tough one for you and...
Marlene Pritchard
opca@...
Feb 12, 2002 12:30 pm
1451
Thanks Lynda, Actually it is supposed to be quite common with people with autoimmune issues. Much more common in women. One more think to about. Some of Ben's...
Mark, God bless your hematologist! It's wonderful to have someone who has as much of a desire to help his patients have a normal life! Go, Ben!!!! Marlene On...
