Hi Everyone, I saw this article and thought that it was interesting...no, it isn't the same as ITP, but at least they are making progress. The most...
lnalou@...
Jan 5, 2002 5:12 am
1360
Hello Group, First of all Happy New Year and hope that all is going well, we are not off to a very good start this year. Paul 's counts are low and the IVIG...
Dear Betty, I am sorry your year is not off to a good start. Nick never tried immuran. Have your doctors every tried vincristine? That worked for Nick. Teenage...
Marlene M Pritchard
opca@...
Jan 7, 2002 5:18 pm
1362
Hi Betty, I'm sorry to hear Paul is having a rough time. It is a lousy way to start the New Year! I've never taken immuran so I'm not of any help there. Paul...
Dear Betty, Micah was on a combo of danazol and immuran suggested by Dr. James Bussell in NYC. It never seemed to do much and he has, so far, responded very...
punstoys@...
Jan 8, 2002 9:36 am
1364
In a message dated 01/08/2002 4:38:43 AM Eastern Standard Time, ... Katie's experience with Vincristine was very good as far as her blood counts...they have...
lnalou@...
Jan 8, 2002 3:00 pm
1365
Betty, So sorry to hear about the rough time for Paul. Ben (11) started imuran last august. we were told that it can take up to 4 or 6 months to see an ...
Betty, My son has never been on Imuran, so sorry I can't help with that, but Prograf, or Tacrolimus did help as long as he was on it. Unfortunately when he...
My son Donavan is 10 and he is on Immuran now for the second time. We
have had pretty good results with it, though he as had some stomach side
effects. It is...
Dear Shelly, Sorry to hear that your husband is having problems with the tranplants, hoepfully they will find a way to manage the pain and I know you are...
Dear Shari, Thanks for the feedback we now have an appointment at the hemo clinic on Jan 28th so I will mention the cellcept. And also the vincristine which...
Dear Donna, Thanks for the feedback, last week Pauls count was 5,000. We would be very content to be at 30,000, he actually feels okay there. It seems now ...
Dear kathy, Thanks for the feedback, I am hoping that Paul will not have the nausea he doesn't usually get a stomach issuse, in fact he never gets a stomach...
Betty, Here's hoping everything goes well and the doctor finds a good course of treatment! Nick does get irritated with me checking - he calls it smothering -...
Marlene M Pritchard
opca@...
Jan 9, 2002 4:41 pm
1373
Betty, With a count of 5,000, no wonder they're trying to find something that will work! I do hope the Imuran will be the drug for him. I had to chuckle when...
Shelly, I'm so sorry to hear about the difficulties your husband is experiencing. That's especially hard to deal with after he was doing so well. It's hard to...
Donna, we solved the heavy backpack problem by having school provide Ben with double sets of textbooks. Then, he only has to bring his binders/papers and it...
Kathy, I believe that Shari responded but incase you missed it Ben's on Immuran and Cellcept and has been stable for 8-9 weeks. Once we split the immuran does ...
Hi everybody, my name is Arthur Woudenberg, a dad to Jasper a 14 year Dutch puber suffering from Evans Syndrome. In Januari 1998 it started with a low level of...
Arthur, I'm sorry to hear of the problems your son is having with Evans. But welcome to the support group. It sounds like he is getting the same treatment...
<A HREF="http://oncology.medscape.com/reuters/prof/2002/01/01.07/20020104clin005.html">Click here: Immunoglobulin Effective for Treatment of Thrombocytopenic ...
lnalou@...
Jan 13, 2002 3:43 am
1380
Does anyone know why i am out of the loop on getting messages? If so how could I get back to getting the messages? I found all of the information very helpful....
Courtney, Did you get this message two times? One addressed to the group and the other to your personal email address? If not, then you need to go to ...
lnalou@...
Jan 14, 2002 3:01 am
1382
So what else is new? Alvis Zujevs _________________________________________________________________ Send and receive Hotmail on your mobile device:...
Alvis Zujevs
alviszujevs@...
Jan 14, 2002 5:35 pm
1383
Our daughter katie was on Immuran for over 1 year and she had no side effects. It kept her in remission. Good luck. Peter (Daughter Katie is 5 years old) ... ...
Katie Chang
katie@...
Jan 15, 2002 3:10 am
1384
Dear Group, I hope the New Year brings good health and happiness to all. I haven't written in a while but my Dad's condition has not improved since July last ...
Lynda, I was hoping Andrew was getting much better. You have quite the challenge ahead of you with both sons being involved in the process. I will be praying! ...
Marlene Pritchard
opca@...
Jan 16, 2002 1:51 am
1387
Lynda, I know I can speak for the group when I say that we will be praying and sending good thoughts your way for all of this to go as smoothly as possible, ...
lnalou@...
Jan 16, 2002 3:01 am
1388
Lynda, Thank you for your reply. I am deeply touched by the courage that you and your son Andrew have shown throughout this tough time. I wish you all the ...
