Hi, JK... Have you or has someone in your family been diagnosed with Evans Syndrome? What kind of recommendation has your family doc given you? Is this for a...
... I can assure you WE ARE VERY SERIOUS the Dr.we have now is not working out and sometimes wonder if there is someone better in our area. Thanks for your...
... Hi Constance, Yes my son was diagnosed as a child he is an adult now we went from a children's hospital setting to an adult hospital this past year and we...
Hi all, I have a quick question for those of you who've had Rixutamab treatments. Has anyone had any issues with their immunoglobulin levels because of the...
Hi JK My son was diagnosed last year with Evans, and we decided to get him the N1H1 vaccine (he actually had his first dose yesterday). It seems that the jury...
... Hi Nicole, My son had rituxin in the past and has developed low igg levels and recieves ivig every three weeks. In our case my son is now an adult. But I...
I am curious as my daughter was on Rituxan a few years ago(it did not work for her)...what is the name of the test for the low IgG? I have never been told that...
Do you know the name of the test?
-----Original Message-----
Date: Friday, October 23, 2009 10:01:25 am
To: EvansSyndrome@yahoogroups.com
From: "j k"...
I see that with yahoo it says that if you are signed in to your mail you can chat with others who also have yahoo address I would be willing to do that if...
Lisa, My understanding is that low IgG levels does not stem from Evans itself, but with the Rituxan and the blanket suppression of the B cells. The reason...
HI Michelle, The combs test shows whether or not there are antibodies to the red blood cells but is not related at all to platelet antibodies. Platelet...
Hi. My son, Nik, was diagnosed with Evans syndrome 6 yrs. ago.(He had been diagnosed with ITP at 17 mos, and kidney disease at age six also)Â He had Rituxan...
I was in the Navy when I was diagnosed with Evans.. I was getting checked regularly but have not been since 2004 due to no medical insurance. I am looking for...
Chad, do you have any symptoms similar to when you were in the Navy? Why can't you go to to V.A. hospital? Debbie ... From: williamdink <williamdink@...>...
Yesterday was 1 year since Patrick's splenectomy....  He continues to do well.... His counts yesterday were: HGB is 14.1, WBC 9.0 and platelets-440,000.  ...
This is martin im 18 and i was diagnose with evans syndrome 10-26-09 i was talking stuck in the hospital for like 10 days my count was down to like 4.6 and...
hello my name is shannon creagh im 40yrs old and i was told i had evans on 3-11-09. i had crystalens surgery in both eyes in january and febuary of 2009 i was...
hi i think there all about tha same all the dr's i have been to just go off what thay have read about evans im told as long as i keep up with my blood work...
I am 55 years old and have had this Evans for 5 years. The first time it happened I had both hemolytic (not sure of the spelling) anemia and no platelets....
homesbybev@...
Nov 9, 2009 7:17 pm
5535
Hi all I have been following the discussions a long time now. mostly I see young people being diagnosed. My mom is 83 and have been diagnosed with evans...
Ok just getting ready to go get the H1N1. Any advise from adults getting this shot? i am 55 years old with Evans. Bev In a message dated 8/31/2009 4:26:10...
homesbybev@...
Nov 12, 2009 7:31 pm
5537
Hi Bev, let us know how you react to the H1N1 vacine. I have my doubts on it thanks marc ________________________________ De: "homesbybev@..."...
I did get the H1N1 flu shot a couple of days ago. I got the regular flu shot about a month ago. So far so good. A couple of years ago I got the flu and it...
homesbybev@...
Nov 15, 2009 12:48 am
5539
i have posted alot of things about haveing evans but no one has replied just wanted to make sure im doing this right...
i just sent you an email. Did you get it? Bev In a message dated 11/17/2009 3:57:28 P.M. Central Standard Time, shannoncreagh12@... writes: i have...
homesbybev@...
Nov 17, 2009 10:06 pm
5541
Shannon, I'm here and I sometimes miss things. What's going on? Is everything ok? Debbie, mother of Hannah 17 in remission. ... From: shannoncreagh12...
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