From: aamom4ever <aamom4ever@...>
Subject: [EvansSyndrome] Re: alex
To: EvansSyndrome@yahoogroups.com
Date: Thursday, July 16, 2009, 1:23 PM

 

Thanks for the response about NPlate we are waiting for the insurance approval. Our doctor is excitied about this medication, she does not want to repeat another round of riutuxon on him. He has had riutuxon
3 three different times 1 year apart and she said they are starting to see bad side effects from it. I will let you all know what happens, thanks again
mindy (mom to alex)

--- In EvansSyndrome@ yahoogroups. com, Constance McNamara <palemoontwilight@ ...> wrote:
>
> I'm glad to hear that Alex is a candidate for NPlate. I have spoken of this new treatment before, but I have a little more insight into it now.
>
> NPlate is a new stimulating agent by Amgen, It used to be called AMG 531. It does not affect immune system like Rituxan or steroids. Instead it increases platelet production. This is obviously a good result. but it does have a downside: the need for constant IV treatment and dependence on the drug. After it is discontinued, counts plummet. There is another drug by Glaxo called Promacta that has a similar effect and can be considered instead of NPlate.
>
> I hope you find this information helpful.
>
> Constance McNamara
> Administrator, Evans Syndrome Community Network
> http://www.evanssyn drome.net/
>
> Please note that I am not a medical practitioner. Any suggestion given in this email with regard to treatment options for Evans Syndrome are given strictly from a layman's point of view, and should be considered as such. Please consult with your physician before making treatment decisions.
>
>
>
> On Wednesday, July 08, 2009, at 04:07PM, "aamom4ever" <aamom4ever@ ...> wrote:
> >
>