Thanks for the response about NPlate we are waiting for the insurance approval.
Our doctor is excitied about this medication, she does not want to repeat
another round of riutuxon on him. He has had riutuxon
3 three different times 1 year apart and she said they are starting to see bad
side effects from it. I will let you all know what happens, thanks again
mindy (mom to alex)


--- In EvansSyndrome@yahoogroups.com, Constance McNamara <palemoontwilight@...>
wrote:
>
> I'm glad to hear that Alex is a candidate for NPlate. I have spoken of this
new treatment before, but I have a little more insight into it now.
>
> NPlate is a new stimulating agent by Amgen, It used to be called AMG 531. It
does not affect immune system like Rituxan or steroids. Instead it increases
platelet production. This is obviously a good result. but it does have a
downside: the need for constant IV treatment and dependence on the drug. After
it is discontinued, counts plummet. There is another drug by Glaxo called
Promacta that has a similar effect and can be considered instead of NPlate.
>
> I hope you find this information helpful.
>
> Constance McNamara
> Administrator, Evans Syndrome Community Network
> http://www.evanssyndrome.net/
>
> Please note that I am not a medical practitioner. Any suggestion given in this
email with regard to treatment options for Evans Syndrome are given strictly
from a layman's point of view, and should be considered as such. Please consult
with your physician before making treatment decisions.
>
>
>
> On Wednesday, July 08, 2009, at 04:07PM, "aamom4ever" <aamom4ever@...> wrote:
> >
>