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I'm glad to hear that Alex is a candidate for NPlate. I have spoken of this new treatment before, but I have a little more insight into it now. NPlate is a new stimulating agent by Amgen, It used to be called AMG 531. It does not affect immune system like Rituxan or steroids. Instead it increases platelet production. This is obviously a good result. but it does have a downside: the need for constant IV treatment and dependence on the drug. After it is discontinued, counts plummet. There is another drug by Glaxo called Promacta that has a similar effect and can be considered instead of NPlate. I hope you find this information helpful. Constance McNamara Administrator, Evans Syndrome Community Network http://www.evanssyndrome.net/ Please note that I am not a medical practitioner. Any suggestion given in this email with regard to treatment options for Evans Syndrome are given strictly from a layman's point of view, and should be considered as such. Please consult with your physician before making treatment decisions. On Wednesday, July 08, 2009, at 04:07PM, "aamom4ever" <aamom4ever@...> wrote: >
hello everyone this is mindy, alex's mom havent been on in quite awhile Alex is having his famous summer drop just like clockwork his platlets are at 4,000 the doctors are frowning on using riutuxon again he has already had three rounds over the past 3 years they are leaning for the new medication called "en plate" not quite sure of the spelling but its a once a week shot and it raises the platlets. He underwent a bone marrow today since its been several years since he had one before they start the shot. So I wanted to ask if anyone is familiar with this new medication? The doctors are very excited about it.
Thank you , mindy (mom to alex 8 1/2)
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