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Re: [EvansSyndrome] alex

MINDY,
 
sorry to hear of Alex's drop, that change is never easy. I was interested to hear of the new injection treatment Nplate and please keep us posted . good luck
 
Betty mom to Paul 22 with Evans+
 
 


Thu Jul 9, 2009 12:51 am

bettanmic
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Message #5373 of 5561 |
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  Hi..Sorry to hear about Alex.  My granddaughter Madison is Alex's age(diagnosed with ITP/Evan's Syndrome one week before her 5th birthday) and we have...
randy or debbie shoen...
shoenfelts
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Jul 9, 2009
12:09 am

MINDY, sorry to hear of Alex's drop, that change is never easy. I was interested to hear of the new injection treatment Nplate and please keep us posted . good...
bettanmic@...
bettanmic
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Jul 9, 2009
12:52 am

Hi, all I am interested to hear what bad side effects you are hearing reported for Rituxan. I know there has bben increased incidence of a couple of kinds of...
Debby Wechsler
jmdjbw
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Jul 17, 2009
12:47 pm

What sort of side effects are you seeing? Jessica ... From: aamom4ever <aamom4ever@...> Subject: [EvansSyndrome] Re: alex To:...
Jessica Diggs-Growden
indigoleo27
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Jul 17, 2009
1:04 pm

hello everyone this is mindy mom to alex, well were back in the hospital he just got addmitted today. he never did start the Nplate all his count crashed and...
aamom4ever
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Jul 24, 2009
6:17 am

ben has been on cellcept for the better part of 6 years and it is his magic bullet. as long as he takes it (there were times when he was younger that it was an...
Shari Miller
sharim61
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Jul 24, 2009
10:31 am

DEAR MINDY, CELLCEPT SEEMED TO BE THE BEST SOLUTION FOR PAUL, AFTER TRYING SEVERAL OTHER TREATMENTS, I THINK IT TOOK TWO WEEKS OR SO TO REALLY KICK IN, PLEASE...
bettanmic@...
bettanmic
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Jul 27, 2009
12:09 am
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