From: Famfar@... <Famfar@...>
Subject: Re: [EvansSyndrome] Patrick-7 months post splenectomy
To: EvansSyndrome@yahoogroups.com
Date: Monday, June 15, 2009, 8:59 PM

My daughter hannah went through all of the same...way to  much to mention. At a platelet count of 4000 we decided on rituximab. After 3 difficult treatments, we are coombs negative and at 400000 platelet count. I am still  holding my breath. Thank god for medicine and doctors that are dedicated.

Debbie Farias 


-----Original Message-----
From: cindy sherwood <cindy_sherwood@ yahoo.com>
To: EvansSyndrome@ yahoogroups. com
Sent: Mon, Jun 15, 2009 10:14 pm
Subject: Re: [EvansSyndrome] Patrick-7 months post splenectomy

Hi Everyone,   I saw this great positive message and I wanted to give all of you an update on my 14 year old Gabby.   We went through the Rituximab in January and Feburary and have been holding our breath. It is because of this forum that I even found out about this and suggested this to our Oncologist/Hemotolo gist.   Gabby is Coombs positive and has no platelets. Since we=2 0did the Rituximab she has been holding steady at 285k platelets since March and all of her other counts including WBC are perfect.   I am very optimistic, we have been through 2 years of complete dissaray with 6 children.   Thank you so much for this forum and everything I have learned here. It is a wealth of knowledge and great support. I cannot thank all of you enough for all of your support and help. We continue to be thankful every day for this forum.   Thanks again, Gabby continues to thrive during this good time.   Thanks you again for all of your support,   Cindy Sherwood --- On Mon, 6/15/09, Erin Marcoux Healey <eheals27@yahoo. com> wrote: From: Erin Marcoux Healey <eheals27@yahoo. com> Subject: [EvansSyndrome] Patrick-7 months post splenectomy To: EvansSyndrome@ yahoogroups. com Date: Monday, June 15, 2009, 8:20 AM To all: We are now 7 month after surgery and Patrick continues to do well... As of Friday, HGB is 13.9, WBC 10.2 and PLT 419,000. Coombs test is negative since March... So far, so good, we continue to keep our fingers crossed... Hope all is well with everyone on board Erin --- In EvansSyndrome@ yahoogroups. com, "jmdjbw" <wechslerbrooks@ ...> wrote: > > Hi, all, > My son, who has Evans Syndrome, will be going off to college this fall in the Cleveland area. I presume the medical center of choice is the Cleveland Clinic, and wonder if anyone has a hematologist to recommend (or recommend against). He is also making the transition from pediatric to adult medicine, we are kind of sorry about that. We hope to find him a doctor who is also accessible and good with young adults! Scary to have him leave home... > Thanks. > DW >

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