EvansSyndrome : Message: Re: [EvansSyndrome] Patrick-7 months post splenectomy

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Message #5369 of 5559 |

Re: [EvansSyndrome] Patrick-7 months post splenectomy

I am glad to hear that Gabby is going well, my son Paul now 22, has been thru many things with his Evans as well as other health and learning issues. BUT he has been feeling well with low but for him adequate

platelets and hasn't had any treatments or drugs of any kind for the last year and a half. We are thankful for this healthy period and thrilled to have others experience it as well. We pray that others may have it as well and know how fragile the whole picture is. Thank you all .

Betty mom to Paul with Evans+

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Tue Jun 16, 2009 12:14 pm

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Message #5369 of 5559 |

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Hi, all, My son, who has Evans Syndrome, will be going off to college this fall in the Cleveland area. I presume the medical center of choice is the Cleveland...	jmdjbw	Jun 9, 2009 2:32 am
To all: We are now 7 month after surgery and Patrick continues to do well... As of Friday, HGB is 13.9, WBC 10.2 and PLT 419,000. Coombs test is negative since...	Erin Marcoux Healey eheals27	Jun 15, 2009 2:21 pm
Hi Everyone, I saw this great positive message and I wanted to give all of you an update on my 14 year old Gabby. We went through the Rituximab in...	cindy sherwood cindy_sherwood	Jun 16, 2009 2:15 am
My daughter hannah went through all of the same...way to much to mention. At a platelet count of 4000 we decided on rituximab. After 3 difficult treatments,...	Famfar@... debbie.farias	Jun 16, 2009 3:01 am
Glad to hear Gabby is doing well... PLT of 285 is great... Patrick is 16, tough for a teenager to have to deal with these things... My son appears to...	Erin Healey eheals27	Jun 16, 2009 3:00 am
All, I will always be holding my breath anf thanking you all with the breath of my body for all of your help. You have no idea how thankful I am for this...	cindy sherwood cindy_sherwood	Jun 16, 2009 3:09 am
I wish you all were here,,,noone can understand what this disease is. It is lonely and scary. I am scared for the future. Debbie ... From: cindy sherwood...	Famfar@... debbie.farias	Jun 16, 2009 3:44 am
I am glad to hear that Gabby is going well, my son Paul now 22, has been thru many things with his Evans as well as other health and learning issues. BUT he...	bettanmic@... bettanmic	Jun 16, 2009 12:16 pm
Gabby was at a platelet count of 1k right before we started the rituximab. They wanted me to give her steriods again and I declined. I am so happy. The...	cindy sherwood cindy_sherwood	Jun 22, 2009 1:15 am

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