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Cleveland area hematologist?   Message List  
Reply | Forward Message #5363 of 5561 |
Patrick-7 months post splenectomy

To all:

We are now 7 month after surgery and Patrick continues to do well...

As of Friday, HGB is 13.9, WBC 10.2 and PLT 419,000.

Coombs test is negative since March...

So far, so good, we continue to keep our fingers crossed...

Hope all is well with everyone on board

Erin


--- In EvansSyndrome@yahoogroups.com, "jmdjbw" <wechslerbrooks@...> wrote:
>
> Hi, all,
> My son, who has Evans Syndrome, will be going off to college this fall in the
Cleveland area. I presume the medical center of choice is the Cleveland Clinic,
and wonder if anyone has a hematologist to recommend (or recommend against). He
is also making the transition from pediatric to adult medicine, we are kind of
sorry about that. We hope to find him a doctor who is also accessible and good
with young adults! Scary to have him leave home...
> Thanks.
> DW
>





Mon Jun 15, 2009 2:20 pm

eheals27
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Message #5363 of 5561 |
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Hi, all, My son, who has Evans Syndrome, will be going off to college this fall in the Cleveland area. I presume the medical center of choice is the Cleveland...
jmdjbw
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Jun 9, 2009
2:32 am

To all: We are now 7 month after surgery and Patrick continues to do well... As of Friday, HGB is 13.9, WBC 10.2 and PLT 419,000. Coombs test is negative since...
Erin Marcoux Healey
eheals27
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Jun 15, 2009
2:21 pm

Hi Everyone,   I saw this great positive message and I wanted to give all of you an update on my 14 year old Gabby.   We went through the Rituximab in...
cindy sherwood
cindy_sherwood
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Jun 16, 2009
2:15 am

My daughter hannah went through all of the same...way to  much to mention. At a platelet count of 4000 we decided on rituximab. After 3 difficult treatments,...
Famfar@...
debbie.farias
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Jun 16, 2009
3:01 am

Glad to hear Gabby is doing well...   PLT of 285 is great...   Patrick is 16, tough for a teenager to have to deal with these things...   My son appears to...
Erin Healey
eheals27
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Jun 16, 2009
3:00 am

All,   I will always be holding my breath anf thanking you all with the breath of my body for all of your help. You have no idea how thankful I am for this...
cindy sherwood
cindy_sherwood
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Jun 16, 2009
3:09 am

I wish you all were here,,,noone can understand what this disease is. It is lonely and scary. I am scared for the future. Debbie ... From: cindy sherwood...
Famfar@...
debbie.farias
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Jun 16, 2009
3:44 am

I am glad to hear that Gabby is going well, my son Paul now 22, has been thru many things with his Evans as well as other health and learning issues. BUT he...
bettanmic@...
bettanmic
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Jun 16, 2009
12:16 pm

Gabby was at a platelet count of 1k right before we started the rituximab. They wanted me to give her steriods again and I declined. I am so happy. The...
cindy sherwood
cindy_sherwood
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Jun 22, 2009
1:15 am
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