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EvansSyndrome · The Evans Syndrome mailing list is for the purpose of sharing information and support to those individuals who have or know som
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Reply | Forward Message #5260 of 5561 |
Re: New Members

HI,

My name is Andi, my son Nick (now 26) was diagnosed with Evans a few
years ago. This group has given me hope. There are many treatments
available and getting the one that works best may be a challenge, but
there is one that will work. Keep faith, my prayers are with your
family.




Sun Feb 15, 2009 6:51 pm

stillermom
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Message #5260 of 5561 |
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Hi all, Our family is new to all of this; our 17 years old daughter has just been diagnosed with Evans, Lupis Anticoagulant, Anemia and several others. She was...
Nikki
waynelovebug
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Feb 14, 2009
10:52 pm

Hi,   My name is Cindy, this is the first time I have written anything on this forum. I joined about 4 months ago, and it has been a WEALTH of knowledge.   ...
cindy sherwood
cindy_sherwood
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Feb 15, 2009
3:42 am

HI, My name is Andi, my son Nick (now 26) was diagnosed with Evans a few years ago. This group has given me hope. There are many treatments available and...
stillermom
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Feb 15, 2009
6:52 pm

Hi, Cindy :-) What a wonderful, encouraging story! Thank you so much for sharing!! I'm very happy your daughter is responding to her rituximab (Rituxin)...
Constance McNamara
elzangelgirl
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Feb 16, 2009
8:14 pm

Constance,   Thank you so much for this forum..I cannot begin to express how happy I am to have found this site.   Today Gabby still cannot go to school...
cindy sherwood
cindy_sherwood
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Feb 17, 2009
12:28 am

Hey all... First, I just want to make it clear that I am not an Administrator for this Yahoo group. I am an Administrator for the Evans Syndrome Community...
Constance McNamara
elzangelgirl
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Feb 17, 2009
8:33 pm

Hi Constance, Nikki Has Factor 5 Leiden. If there is anything we can do to help please let us know. I will join the facebook group too. ... for this Yahoo...
Nikki
waynelovebug
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Feb 23, 2009
12:27 am

Thank you, Cindy, For letting me know. I will need to talk with you more about Factor V. Is It OK if I contact you directly rather than through the group?...
Constance McNamara
elzangelgirl
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Feb 23, 2009
12:45 pm

Constance, Yes you can contact me directly....
whemenway1@...
waynelovebug
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Feb 23, 2009
1:33 pm

Greetings, Wayne and Nikki. I'm sorry you had to join us under such awful circumstances, but I want to welcome you to the group. I think you will find a lot of...
Constance McNamara
elzangelgirl
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Feb 16, 2009
7:17 pm
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