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EvansSyndrome · The Evans Syndrome mailing list is for the purpose of sharing information and support to those individuals who have or know som
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Reply | Forward Message #5258 of 5559 |
Hi all,
Our family is new to all of this; our 17 years old daughter has just
been diagnosed with Evans, Lupis Anticoagulant, Anemia and several
others. She was in ICU for 2 weeks and is now on a gang of stuff from
blood thinners to steroids. They tried to lower the steroid dose and
her platelet's dropped. We have no idea what to expect and would love
some feedback.

Thank you,
Wayne and Nikki
Sat Feb 14, 2009 10:52 pm

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waynelovebug
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Forward 		Message #5258 of 5559 |
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Hi all, Our family is new to all of this; our 17 years old daughter has just been diagnosed with Evans, Lupis Anticoagulant, Anemia and several others. She was... 		Nikki
waynelovebug
Offline Send Email 		Feb 14, 2009
10:52 pm

Hi,   My name is Cindy, this is the first time I have written anything on this forum. I joined about 4 months ago, and it has been a WEALTH of knowledge.   ...
cindy sherwood
cindy_sherwood
Offline Send Email 		Feb 15, 2009
3:42 am

HI, My name is Andi, my son Nick (now 26) was diagnosed with Evans a few years ago. This group has given me hope. There are many treatments available and...
stillermom
Offline Send Email 		Feb 15, 2009
6:52 pm

Hi, Cindy :-) What a wonderful, encouraging story! Thank you so much for sharing!! I'm very happy your daughter is responding to her rituximab (Rituxin)...
Constance McNamara
elzangelgirl
Offline Send Email 		Feb 16, 2009
8:14 pm

Constance,   Thank you so much for this forum..I cannot begin to express how happy I am to have found this site.   Today Gabby still cannot go to school...
cindy sherwood
cindy_sherwood
Offline Send Email 		Feb 17, 2009
12:28 am

Hey all... First, I just want to make it clear that I am not an Administrator for this Yahoo group. I am an Administrator for the Evans Syndrome Community...
Constance McNamara
elzangelgirl
Offline Send Email 		Feb 17, 2009
8:33 pm

Hi Constance, Nikki Has Factor 5 Leiden. If there is anything we can do to help please let us know. I will join the facebook group too. ... for this Yahoo...
Nikki
waynelovebug
Offline Send Email 		Feb 23, 2009
12:27 am

Thank you, Cindy, For letting me know. I will need to talk with you more about Factor V. Is It OK if I contact you directly rather than through the group?...
Constance McNamara
elzangelgirl
Offline Send Email 		Feb 23, 2009
12:45 pm

Constance, Yes you can contact me directly....
whemenway1@...
waynelovebug
Offline Send Email 		Feb 23, 2009
1:33 pm

Greetings, Wayne and Nikki. I'm sorry you had to join us under such awful circumstances, but I want to welcome you to the group. I think you will find a lot of...
Constance McNamara
elzangelgirl
Offline Send Email 		Feb 16, 2009
7:17 pm
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