From: lisa heisterman <lmheisterman@...>
Subject: Re: [EvansSyndrome] Patrick-almost 3 months post op
To: EvansSyndrome@yahoogroups.com
Date: Wednesday, February 4, 2009, 10:09 AM

Erin, Im so glad to hear his surgery went well and he is still in remission. Madison's doctors have wanted to remove her spleen on several occasions but I opted not to. Her spleen has never been enlarged and Im too afraid it will not work. I am trying to save that as a last option. She is currently on 6mp and has platelets in the 100,000 range. She does not have issues with whites and reds. Yes, I am having a little boy. Due in April. Lisa   --- On Wed, 2/4/09, Erin Healey <eheals27@yahoo. com> wrote: From: Erin Healey <eheals27@yahoo. com> Subject: Re: [EvansSyndrome] Patrick-almost 3 months post op To: EvansSyndrome@ yahoogroups. com Date: Wednesday, February 4, 2009, 8:39 AM Hi Lisa!   Yes, Patrick has his spleen removed on 11/6/8...  He had been feeling very sick since June...lots of stomach discomfort, losing appetite etc..., began withdrawing. ..   His spleen was very enlarged when he was diagnosed in 8/06...Prednisone and Imuran helped shrink it somewhat but it always stayed enlarged...   Hematologist finally referred us to a surgeon in late Oct...  Surgeon advised us to have ti removed...it was dangerous for Patrick to keep it...   Surgery was about 3 hours long, spleen was approx 4 times the normal size and weighed 2 lbs...  It was open surgery because it was too large to remove laproscopicaly.    Drs have been thinking it's more hemolytic anemia than Evans at this point...  They were not sure for a long time...   So far he looks great and I've seen such an improvement in appetite...  He said he feels better too...   Lisa:  Are you expecting a baby???  I see a little timeline on my screen...   Erin --- On Wed, 2/4/09, lisa heisterman <lmheisterman@ yahoo.com> wrote: From: lisa heisterman <lmheisterman@ yahoo.com> Subject: Re: [EvansSyndrome] Patrick-almost 3 months post op To: EvansSyndrome@ yahoogroups. com Date: Wednesday, February 4, 2009, 9:29 AM what surgery did he have? was his spleen removed? Lsia(madison' smom)   --- On Wed, 2/4/09, Erin Healey <eheals27@yahoo. com> wrote: From: Erin Healey <eheals27@yahoo. com> Subject: [EvansSyndrome] Patrick-almost 3 months post op To: Evanssyndrome@ yahoogroups. com Date: Wednesday, February 4, 2009, 8:21 AM Hello all...   Patrick's latest visit to hematologist this past Monday went very well...   Hgb is 13.2, WBC 7.5 and Platelets 418,000.   He's feeling much better and eating a lot more too...   Dr could not believe how much color he had in his face...   He was given 6 weeks off until next Dr visit.    Hope everyone is enjoying the new year and feeling well..   Erin