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Patrick-almost 3 months post op   Message List  
Reply | Forward Message #5255 of 5561 |
Re: [EvansSyndrome] Patrick-almost 3 months post op

Hi Lisa!
 
Yes, Patrick has his spleen removed on 11/6/8...  He had been feeling very sick since June...lots of stomach discomfort, losing appetite etc..., began withdrawing...
 
His spleen was very enlarged when he was diagnosed in 8/06...Prednisone and Imuran helped shrink it somewhat but it always stayed enlarged...
 
Hematologist finally referred us to a surgeon in late Oct...  Surgeon advised us to have ti removed...it was dangerous for Patrick to keep it...
 
Surgery was about 3 hours long, spleen was approx 4 times the normal size and weighed 2 lbs...  It was open surgery because it was too large to remove laproscopicaly. 
 
Drs have been thinking it's more hemolytic anemia than Evans at this point...  They were not sure for a long time...
 
So far he looks great and I've seen such an improvement in appetite...  He said he feels better too...
 
Lisa:  Are you expecting a baby???  I see a little timeline on my screen...
 
Erin
--- On Wed, 2/4/09, lisa heisterman <lmheisterman@...> wrote:
From: lisa heisterman <lmheisterman@...>
Subject: Re: [EvansSyndrome] Patrick-almost 3 months post op
To: EvansSyndrome@yahoogroups.com
Date: Wednesday, February 4, 2009, 9:29 AM

what surgery did he have? was his spleen removed? Lsia(madison' smom)

 
Lilypie Expecting a baby Ticker

--- On Wed, 2/4/09, Erin Healey <eheals27@yahoo. com> wrote:
From: Erin Healey <eheals27@yahoo. com>
Subject: [EvansSyndrome] Patrick-almost 3 months post op
To: Evanssyndrome@ yahoogroups. com
Date: Wednesday, February 4, 2009, 8:21 AM

Hello all...
 
Patrick's latest visit to hematologist this past Monday went very well...
 
Hgb is 13.2, WBC 7.5 and Platelets 418,000.
 
He's feeling much better and eating a lot more too...
 
Dr could not believe how much color he had in his face...
 
He was given 6 weeks off until next Dr visit. 
 
Hope everyone is enjoying the new year and feeling well..
 
Erin





Wed Feb 4, 2009 2:39 pm

eheals27
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Message #5255 of 5561 |
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Hello all...   Patrick's latest visit to hematologist this past Monday went very well...   Hgb is 13.2, WBC 7.5 and Platelets 418,000.   He's feeling much...
Erin Healey
eheals27
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Feb 4, 2009
2:21 pm

what surgery did he have? was his spleen removed? Lsia(madison'smom)   ... From: Erin Healey <eheals27@...> Subject: [EvansSyndrome] Patrick-almost 3...
lisa heisterman
lmheisterman
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Feb 4, 2009
2:29 pm

Hi Lisa!   Yes, Patrick has his spleen removed on 11/6/8...  He had been feeling very sick since June...lots of stomach discomfort, losing appetite etc...,...
Erin Healey
eheals27
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Feb 4, 2009
2:39 pm

Erin, Im so glad to hear his surgery went well and he is still in remission. Madison's doctors have wanted to remove her spleen on several occasions but I...
lisa heisterman
lmheisterman
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Feb 4, 2009
3:09 pm

Lisa:   Congratulatons...  My second son was born in April...nice time of year to have a baby...   I don't know that Patrick is considered in remission......
Erin Healey
eheals27
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Feb 4, 2009
3:55 pm
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