Hi Lisa!
Yes, Patrick has his spleen removed on 11/6/8... He had been feeling very sick since June...lots of stomach discomfort, losing appetite etc..., began withdrawing...
His spleen was very enlarged when he was diagnosed in 8/06...Prednisone and Imuran helped shrink it somewhat but it always stayed enlarged...
Hematologist finally referred us to a surgeon in late Oct... Surgeon advised us to have ti removed...it was dangerous for Patrick to keep it...
Surgery was about 3 hours long, spleen was approx 4 times the normal size and weighed 2 lbs... It was open surgery because it was too large to remove laproscopicaly.
Drs have been thinking it's more hemolytic anemia than Evans at this point... They were not sure for a long time...
So far he looks great and I've seen such an improvement in appetite... He said he feels better too...
Lisa: Are you expecting a baby??? I see a little timeline on my screen...
Erin --- On Wed, 2/4/09, lisa heisterman <lmheisterman@...> wrote:
From: lisa heisterman <lmheisterman@...> Subject: Re: [EvansSyndrome] Patrick-almost 3 months post op To: EvansSyndrome@yahoogroups.com Date: Wednesday, February 4, 2009, 9:29 AM
what surgery did he have? was his spleen removed? Lsia(madison' smom)

--- On Wed, 2/4/09, Erin Healey <eheals27@yahoo. com> wrote:
From: Erin Healey <eheals27@yahoo. com> Subject: [EvansSyndrome] Patrick-almost 3 months post op To: Evanssyndrome@ yahoogroups. com Date: Wednesday, February 4, 2009, 8:21 AM
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Hello all...
Patrick's latest visit to hematologist this past Monday went very well...
Hgb is 13.2, WBC 7.5 and Platelets 418,000.
He's feeling much better and eating a lot more too...
Dr could not believe how much color he had in his face...
He was given 6 weeks off until next Dr visit.
Hope everyone is enjoying the new year and feeling well..
Erin | | |