Hi Amy,

 

     Thanks for your response and insight.  Today Rachel had a hematology appointment to check her levels.  They were not very good, WBC was 2.0, ANC (Nuetrophils) were 100.  They have been hanging around these levels for the past few months.  Rachel has been on immunosupprent drugs basically her whole life due to her liver transplant.  She is being seen at CHOP (Children's Hospital of Philadelphia), Dr. Rand is her doctor there.  She is being seen at Lehigh Valley Hospital-Muhlenberg in Bethlehem, PA at the Hematology/Oncology department for the past several years now.  She was diagnosed with Evans after her hemoglobin dropped to 2 and her platelets went down to very low levels.  At that time I think her WBC were OK.  She had a very tough two years before thing stabilized. She went through IVIG, steroids and other cancer drugs to try to stop the immune system from attacking the blood/platelets.  She then got an infection and was given some heavy duty antibiotics which shut down her kidneys.  At that time everything kind of stopped, all her blood counts returned to normal, she was on dialysis for about six months and thing returned to almost normal there.  She was doing well for almost a year after that then her WBC went down and has been there ever since and became worse.  It appears that the nuepogen shots are not working and the Doctors said they are going to consult with Dr. Rand at CHOP to see what the next course of action should be.  We are taking the P.U.S.H. (Pray Until Something Happens) to heart, thanks Rita.  My husband and I will be praying for all, Merry Christmas.  Thanks again Amy for your insight.

 

Nancy