I have been reading the posts lately and I have'nt posted anything
for a while. Sorry to hear about Hannah, we too had to cancel a Dream
come true vacation to Hawaii due to our daughter Rachels' illness. We
eventually went to Disney and the Disney cruise. We still have
concerns when it comes to booking a vacation. Rachel is now 19 years
old, she has had very low white blood cells for about 2 years, they
have become extreamly low that past few months, she is taking Nueogene
shots every day, she sometimes gets mouth sores and tongue sores and
fevers. She has been taking these shots for almost 2 years now, she
has had bone marrow asperations done to see if white blood cells are
being made and they are but they don't know why her WBC is so low. We
are concerned that she will get sick and won't be able to fight it
off. Does any one else have a situation like this or has had some
other treatments for the low WBC. Rachel has had a liver transplant
when shewas 9 months old. Thanks, Nancy