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I always wondered about pools with my son Patrick...
The last two August's, he jumped in the pool when water was getting chilly...his counts dropped... I wondered if the cold water had anything to do with it... This year as soon as water became cool he stayed away from our pool... I think he connects late August as crisis moments for him...
I have always been jiggy about my children swimming in public pools... A few years ago we belonged to a beach club and I wouldn't let my boys anywhere near it...it was very bad...not cleaned or santized properly...Water was cloudy, things floating in it...not good at all...
This illness makes one feel like they are grasping for straws because there are so many unknowns...
Erin
jakk5858 <jakk5858@...> wrote:
--- In EvansSyndrome@yahoogroups. , PaulCrr@... wrote:com
>
> hi folks
>
> I have been quiet for a long time but still read all the emails with
> interest. Nathan is now 13 and he's turning into a young man. We
stay in Scotland,
> for anyone who doesn't remember us! Nathan first developed Evans in
2001. He's
> had 2 episodes, last one in 2006.
>
> Anyway he has just relapsed again (3rd time) with low haemoglobin
and today
> started on 50mg daily prednisolone again. I'll need to find the
fridge lock
> and adapt to even more teenage attitude!
>
> I'd really like to know what triggers these episodes....a fortnight
ago
> Nathan went swimming for the first time in a long time. After his
swimming his
> eyes were really sore (we suspected it was a reaction to chlorine)
and he
> wasn't able to open them for a while. I'm sure i read a while back
emails about
> chlorine and whether chlorine could cause relapse with Evans.
>
> Am I clutching at straws here? I feel like keeping Nathan away from
the
> swimming pool forever!
>
> Paul Curran
> nathan's dad
>
Hello Paul,
I totally agree with the other posts. My son Aaron is now 19
and i feel when he was young there were also drops in counts due to
public pools and the bacteria from so many people.When you think about
children with diapers and that type of issue it changed our minds and
from then on pools were not on the list of things to do.Even people
with good immune systems should take another look.
Julie
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