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Reply | Forward Message #5130 of 5558 |
Re: [EvansSyndrome]

--- In EvansSyndrome@yahoogroups.com, PaulCrr@... wrote:
>
> hi folks
>
> I have been quiet for a long time but still read all the emails with
> interest. Nathan is now 13 and he's turning into a young man. We
stay in Scotland,
> for anyone who doesn't remember us! Nathan first developed Evans in
2001. He's
> had 2 episodes, last one in 2006.
>
> Anyway he has just relapsed again (3rd time) with low haemoglobin
and today
> started on 50mg daily prednisolone again. I'll need to find the
fridge lock
> and adapt to even more teenage attitude!
>
> I'd really like to know what triggers these episodes....a fortnight
ago
> Nathan went swimming for the first time in a long time. After his
swimming his
> eyes were really sore (we suspected it was a reaction to chlorine)
and he
> wasn't able to open them for a while. I'm sure i read a while back
emails about
> chlorine and whether chlorine could cause relapse with Evans.
>
> Am I clutching at straws here? I feel like keeping Nathan away from
the
> swimming pool forever!
>
> Paul Curran
> nathan's dad
>
Hello Paul,
I totally agree with the other posts. My son Aaron is now 19
and i feel when he was young there were also drops in counts due to
public pools and the bacteria from so many people.When you think about
children with diapers and that type of issue it changed our minds and
from then on pools were not on the list of things to do.Even people
with good immune systems should take another look.
Julie




Tue Sep 9, 2008 11:05 pm

jakk5858
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Message #5130 of 5558 |
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hi folks I have been quiet for a long time but still read all the emails with interest. Nathan is now 13 and he's turning into a young man. We stay in...
PaulCrr@...
paulcrr
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Sep 9, 2008
9:13 pm

Paul,   I am so sorry about Nathan's relapse.  It makes me sick to think how quickly one can go from healthy to sick with this awful disease.  Katie really...
Grace Hill
rghill1diabl...
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Sep 9, 2008
9:27 pm

Hi Paul, My name is Lisa and my daughter Madsion is 8 years old and was diagnosed with Evan's Syndrome a little over 3 years ago. She has had many ups and down...
lisa heisterman
lmheisterman
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Sep 9, 2008
9:29 pm

... stay in Scotland, ... 2001. He's ... and today ... fridge lock ... ago ... swimming his ... and he ... emails about ... the ... Hello Paul, I totally...
jakk5858
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Sep 9, 2008
11:05 pm

I always wondered about pools with my son Patrick... The last two August's, he jumped in the pool when water was getting chilly...his counts dropped... I...
Erin Healey
eheals27
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Sep 10, 2008
1:34 am
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