Hi Paul,
My name is Lisa and my daughter Madsion is 8 years old and was diagnosed with Evan's Syndrome a little over 3 years ago. She has had many ups and down and is now currently on 6mp which is an oral chemo. This is the second time she has used this drug and we seem to have success with it.
I am a strong believer that chlorine has a lot to do with Madison's platelets crashing. When she was originally diagnosed whe was in swimming lessons. I can say that almost every time we have had issues with platelets crashing, it has involved chlorine. The latest was a few weeks ago. I normally do not let her in public pools but she went on vacation with my parents and went swimming 3 days in a row. Prior to that her platelets were over 200,000 and she came down quite a bit after the swimming. Her doctors do not agree with me since there is nothing proven but I strongly believe that the chlorine can be a trigger for some people. I have spoke with 2 other mothers that had children in swimming lessons at the time their child was diagnosed.
Good luck and hope his counts come up. I know how hard the steroids can be. Lisa
No task before me is greater than the POWER behind me!!
“We are pressed on every side by troubles, but we are not crushed and broken. We are perplexed, but we don't give up and quit. We are hunted down, but God never abandons us. We get knocked down, but we get up again and keep going. ” (2 Corinthians 4:8-9) --- On Tue, 9/9/08, PaulCrr@... <PaulCrr@...> wrote: From: PaulCrr@... <PaulCrr@...> |
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