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Re: [EvansSyndrome]

Paul,
 
I am so sorry about Nathan's relapse.  It makes me sick to think how quickly one can go from healthy to sick with this awful disease.  Katie really enjoys the emails they have shared over the past couple of years.
 
They only thing I have heard about chlorine is that it can cause platelets to fall temporarily.  However, every child has his own trigger or triggers.  We have connected a couple of Katie's relapses with her braces, but other relapses seem to come from no where. 
 
Maybe the chemicals in the pool were a trigger for Nathan.  Also, even with the chlorine, pools are full of bacteria.  Maybe the bacteria in the pool caused Nathan's immune system to react.  I am convinced that one of Katie's relapses was caused by swiming in a cloudy indoor pool at a hotel (indoor pools have more bacteria than outdoor pools). I may be off base, but I won't ever let her swim in an indoor pool again.
 
Then again, maybe it had nothing to do with the pool.  Has Nathan been under more stress than normal?  That seems to affect Katie.
 
Please give our best to Nathan.  We will be hoping that he will go into remission quickly this time.
 
Best wishes,
 
Grace
 


--- On Tue, 9/9/08, PaulCrr@... <PaulCrr@...> wrote:
From: PaulCrr@... <PaulCrr@...>
Subject: Re: [EvansSyndrome]
To: EvansSyndrome@yahoogroups.com
Date: Tuesday, September 9, 2008, 2:12 PM

hi folks
 
I have been quiet for a long time but still read all the emails with interest. Nathan is now 13 and he's turning into a young man. We stay in Scotland, for anyone who doesn't remember us! Nathan first developed Evans in 2001. He's had 2 episodes, last one in 2006.
 
Anyway he has just relapsed again (3rd time) with low haemoglobin and today started on 50mg daily prednisolone again. I'll need to find the fridge lock and adapt to even more teenage attitude! 
 
I'd really like to know what triggers these episodes.... a fortnight ago Nathan went swimming for the first time in a long time. After his swimming his eyes were really sore (we suspected it was a reaction to chlorine) and he wasn't able to open them for a while. I'm sure i read a while back emails about chlorine and whether chlorine could cause relapse with Evans.
 
Am I clutching at straws here? I feel like keeping Nathan away from the swimming pool forever!
 
Paul Curran
nathan's dad


Tue Sep 9, 2008 9:27 pm

rghill1diabl...
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Message #5128 of 5556 |
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hi folks I have been quiet for a long time but still read all the emails with interest. Nathan is now 13 and he's turning into a young man. We stay in...
PaulCrr@...
paulcrr
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Sep 9, 2008
9:13 pm

Paul,   I am so sorry about Nathan's relapse.  It makes me sick to think how quickly one can go from healthy to sick with this awful disease.  Katie really...
Grace Hill
rghill1diabl...
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Sep 9, 2008
9:27 pm

Hi Paul, My name is Lisa and my daughter Madsion is 8 years old and was diagnosed with Evan's Syndrome a little over 3 years ago. She has had many ups and down...
lisa heisterman
lmheisterman
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Sep 9, 2008
9:29 pm

... stay in Scotland, ... 2001. He's ... and today ... fridge lock ... ago ... swimming his ... and he ... emails about ... the ... Hello Paul, I totally...
jakk5858
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Sep 9, 2008
11:05 pm

I always wondered about pools with my son Patrick... The last two August's, he jumped in the pool when water was getting chilly...his counts dropped... I...
Erin Healey
eheals27
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Sep 10, 2008
1:34 am
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