hi folks
I have been quiet for a long time but still read all the emails with interest. Nathan is now 13 and he's turning into a young man. We stay in Scotland, for anyone who doesn't remember us! Nathan first developed Evans in 2001. He's had 2 episodes, last one in 2006.
Anyway he has just relapsed again (3rd time) with low haemoglobin and today started on 50mg daily prednisolone again. I'll need to find the fridge lock and adapt to even more teenage attitude!
I'd really like to know what triggers these episodes....a fortnight ago Nathan went swimming for the first time in a long time. After his swimming his eyes were really sore (we suspected it was a reaction to chlorine) and he wasn't able to open them for a while. I'm sure i read a while back emails about chlorine and whether chlorine could cause relapse with Evans.
Am I clutching at straws here? I feel like keeping Nathan away from the swimming pool forever!
Paul Curran
nathan's dad