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EvansSyndrome · The Evans Syndrome mailing list is for the purpose of sharing information and support to those individuals who have or know som
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interesting topic   Message List  
Reply | Forward Message #5117 of 5553 |
Re: [EvansSyndrome] interesting topic

thanks for the information, yes the group does seem quiet lately, Paul is now 21, he was 12 when we first joined, he is doing well from with his Evans, he has been off all medicines for at least a year, and had one IVIG infusion this year, he did see an immunologist at the beginning but not since.Next month is his cardiac review and we are holding our breath, my best to everyone
 
 
Betty mom to Paul 21 Evans +



It's only a deal if it's where you want to go. Find your travel deal here.
Thu Sep 4, 2008 3:27 pm

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bettanmic
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Forward 		Message #5117 of 5553 |
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Hi all, The group has been quiet lately.  I hope everyone is doing well.  Aidan is doing really well.  His bone marrow transplant was over one year ago, it... 		Amy Walsh
smlybly
Offline Send Email 		Sep 3, 2008
11:57 pm

interesting...thank you for sharing Erin Amy Walsh <smlybly@...> wrote: Hi all, The group has been quiet lately. I hope everyone is doing well. Aidan...
Erin Healey
eheals27
Offline Send Email 		Sep 4, 2008
1:10 am

Hi Amy. I would have loved to have been there. I really need to educate myself more on this topic. There is so much to learn. I just want to be able to...
Laurie Gedz
nikgmom
Offline Send Email 		Sep 4, 2008
1:12 am

Thanks Amy, I find this very interesting. I'm glad to hear that Aidan is doing well after his BMT. I am a Evans's patient and have not been to a immunologist...
evb427@...
evanswmn
Offline Send Email 		Sep 4, 2008
1:15 am

thanks for the information, yes the group does seem quiet lately, Paul is now 21, he was 12 when we first joined, he is doing well from with his Evans, he has...
bettanmic@...
bettanmic
Offline Send Email 		Sep 4, 2008
3:27 pm

Hi Amy, Thank you for sharing.That is very helpful!Rebekah has been doing well since February...we are hoping it stays that way, once cold season hits:)I am...
Jn New
dadeslot
Offline Send Email 		Sep 4, 2008
4:27 pm

Hi Amy, Thanks for the update. It is wonderful to hear how well Aidan is doing. Who was the doctor that spoke? I definitely need to look into meetings here in...
SAnder823@...
sander823
Offline Send Email 		Sep 6, 2008
9:45 am

Susan,   Thanks for sharing the information about the NIH study!  How exciting!  I hope more evans patients will get involved.  I know we had an excellent...
Amy Walsh
smlybly
Offline Send Email 		Sep 6, 2008
6:47 pm
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