I think I am supposed to respond to this message to make sure I am still a member of the Evans Syndrome group. I would still like to be included. Thank you....
I too would still like to be included in the group, I look to stay up to date with others this way, hope that it still happens Betty Mom to Paul 20 Evans+ ...
I also would like to stay abreast of the groups updates. Hope all is well with everyone, Thomas ... From: bettanmic@... To: EvansSyndrome@yahoogroups.com ...
Dear Lou, I hope you are doing well. Micah is currently enrolled in an NIH study. His new doctors in PA are also considering a diagnosis of ALPS. Unphased,...
I too would still like to be included in this group!It is comforting and educational.My daughter is nine and has had this for two years now.She still does well...
I'm glad to be back in the loop. Nick was in crisis in 2001-2002 (Evans and other auto immune issues - including Lupus) and he's doing very well. During that...
Marlene Pritchard
opca@...
Mar 9, 2008 8:08 pm
Hi Marlene, Thank you so much for sharing Nick's accompolishments with us. I don't post very often these days but I monitor the messages and pray for the...