I too would still like to be included in this group!It is comforting
and educational.My daughter is nine and has had this for two years
now.She still does well w/ a steroid pulse about every 45 days.We were
very pleased when she went into a brief remission last summer.Her
counts all hovered near normal for almost 6 months.She has been
struggling since the fall though.In fact,she has had 4 pulses since
October and is only in the 50's for platelets currently.I suspect
before the coming week is through, we will be on another short
pulse.We have been thankful that her neutrophils were at safe levels,
for the most part,this winter.

Her hem/onc was thinking about sending her to Sloane Kettering in
NYC... to an immunologist there.She wanted to look for an underlying
immune issue or disease.After some blood retesting though,she is no
longer advising that trip.

Jennifer(mom to Rebekah)