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EvansSyndrome · The Evans Syndrome mailing list is for the purpose of sharing information and support to those individuals who have or know som
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Reply | Forward Message #5021 of 5559 |
Re: [EvansSyndrome] test

Dear Lou,
 
I hope you are doing well.  Micah is currently enrolled in an NIH study.  His new doctors in PA are also considering a diagnosis of ALPS. 
 
Unphased, he is applying to graduate school.
 
My best to you and all of the Evan's family...
 
Shelly




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Sat Mar 8, 2008 10:31 pm

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essbeth3
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Forward 		Message #5021 of 5559 |
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lnalou
Offline Send Email 		Mar 2, 2008
7:17 pm

I think I am supposed to respond to this message to make sure I am still a member of the Evans Syndrome group. I would still like to be included. Thank you....
mnd_sommers
Offline Send Email 		Mar 7, 2008
4:53 am

what exactly has changed about reaching the group? how is everyone doing? mnd_sommers <mnd_sommers@...> wrote: I think I am...
Shari Miller
sharim61
Offline Send Email 		Mar 7, 2008
11:28 am

... me too !!!...
jakk5858
Offline Send Email 		Mar 13, 2008
2:04 am

I too would still like to be included in the group, I look to stay up to date with others this way, hope that it still happens Betty Mom to Paul 20 Evans+ ...
bettanmic@...
bettanmic
Offline Send Email 		Mar 7, 2008
4:18 pm

I also would like to stay abreast of the groups updates. Hope all is well with everyone, Thomas ... From: bettanmic@... To: EvansSyndrome@yahoogroups.com ...
Crimsontyde01@...
crimsontyde01
Offline Send Email 		Mar 7, 2008
5:58 pm

Dear Lou, I hope you are doing well. Micah is currently enrolled in an NIH study. His new doctors in PA are also considering a diagnosis of ALPS. Unphased,...
shelly payson
essbeth3
Offline Send Email 		Mar 8, 2008
10:31 pm

I too would still like to be included in this group!It is comforting and educational.My daughter is nine and has had this for two years now.She still does well...
dadeslot
Offline Send Email 		Mar 9, 2008
3:26 pm

I'm glad to be back in the loop. Nick was in crisis in 2001-2002 (Evans and other auto immune issues - including Lupus) and he's doing very well. During that...
Marlene Pritchard
opca@...
Send Email 		Mar 9, 2008
8:08 pm

Hi Marlene, Thank you so much for sharing Nick's accompolishments with us. I don't post very often these days but I monitor the messages and pray for the...
Debra Adamo
sdkkadamo
Offline Send Email 		Mar 11, 2008
4:59 pm

Marlene, I really appreciate you giving us an update on how your son is doing. I printed your email to show to my 15 year old son. Nick is truly an...
SAnder823@...
sander823
Offline Send Email 		Mar 10, 2008
4:11 am

I also would like to be included in all updates and info with this group. Hope this finds all well. Eileen...
evanswmn
Offline Send Email 		Mar 11, 2008
6:59 pm
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