Unfortunately, my dealings with NIH were not as positive... they have
NO study available for Evans Syndrome. At separate times, my son had
no recordable platelets and a hemoglobin of 4.5. The only study they
have were for people who had chronic ITP. I have contacted my
congressman and senator about this, and I have never received a
response. Our local blood bank and university medical centers do not
have any studies either. I wish you well with the NIH... I hope you
son gets the medical care that makes him well.