--- In EvansSyndrome@yahoogroups.com, bettanmic@... wrote:
>
> Susan,
>
> Paul had far more serious platelet crashes when he was younger
( now 20)
> , and more nose bleeds and bruising, he is off all meds now and
hasn't had
> an IVIG treatment since April. Still his platelets never go over
50,000. he
> has been feeling better good so far this fall but like everyone we
take each
> day as it comes and are always waiting for the other shoe to fall.
>
> My hopes that everyone has a safe and Happy Thanksgiving. My
best to all
>
> Betty Mom to Paul 20 Evans+
>
> Betty, my son Aaron will be 19 his platelets also hover around
50,000 he had IVIG last week they had dropped to 7,000. went up to
180,000 then boom back to his reg. 50,000.Your words are exactly the
way i feel waiting for the other shoe to fall.
I wish none of us had to go through this but if we have to at least we
can come here to talk. Julie
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>