Hi Rachel..I am Madison's grandmother. I just wanted to let you know
that you DO NOT have to use the tegraderm to cover the Emla. The
tegraderm can stick so tight, and it hurts probably as much as a
needle stick if not worse to remove it. All you have to do is cover
the glob of Emla with folded layers of plastic wrap, and you can use
some paper tape to help hold edges, altho it certainly isn't
necessary. Just make the plastic large enough to cover the area and
then wrap the arm, hand etc., with Coban. That holds it in place
perfectly and when it is time to remove it there is absolutely NO
pain like the tegraderm can cause. Please try it! It makes the lab
draws sooo much easier, both physically and emotionally for our
little angels ! Debbie
--- In EvansSyndrome@yahoogroups.com, Theodore Schluenderfritz
<ted@...> wrote:
>
> Hello Rachel,
>
> I have been reading your emails on Rhea and my heart goes out to
you.
> My son Teddy was diagnosed at 15 months and at 3 and a half he
ended
> up back in the hospital for two weeks. That was really difficult.
And
> when he came home he was on high doses of steroids and he was so
> lethargic, bloated, hungry etc. That was nine months ago and now
we
> are still trying to get him off steroids but it is right now a
dose
> that doesn't seem to cause him any major problems. But I did want
to
> tell you that these last nine months have made a great difference
in
> dealing with his condition because he has so much more
understanding.
> We explain to him about his health and we try different things to
> support his system and he participates. But we do live with that
fear
> and uncertainty since this is such and unpredictable condition. I
> will pray that all goes well for Rhea.
>
> Rachel Maria, mom to Teddy,4 (among others)
>