SEEING THE POSTS TODAY ABOUT BLOOD DRAWS, YES WE USE THE ELAM TOO, ALSO LIKE EVERYWHERE SOME PEOPLE ARE BETTER DRAWING BLOOD THAN OTHERS, AT THE HOSPITAL THERE ARE TWO PEOPLE WHO ALWAYS ARE ABLE TO GET MY SON AND WE REQUEST THEM AND WAIT FOR THEM. TODAY WE BROUGHT THEM IN GARDEN TOMATOES. SOMETIMES WE HAVE TO WAIT BUT IT IS WORTH IT. PAUL HAS BEEN OFF ALL MEDICINES FOR SEVERAL MONTHS NOW AND ALTHOUGH HIS COUNTS AREN'T HIGH THEY AREN'T TOO LOW. I WAS TOLD THAT THE CELLCEPT WAS PROBABLY IN HIS CASE, RESPONSIBLE FOR HIS ENLARGED LYMPH NODES . I AM ALWAYS KEEPING ALL OF YOU IN MY THOUGHTS AND PRAYERS.
Hi to everyone, I am new to this group and am looking for other people to talk to. I have done a little bit of looking through the questions which have been...
Hi Rachel! Welcome to this group...I am a fairly new member and check in once in awhile... My son who is 14 1/2, became ill in August 2006. He has hemolytic...
Erin - Thank you for responding, it is much appreciated. I am very sorry to hear about your son. The doctors had my daughter on folic acid shortly after she...
Hi Rachel! Glad to hear back from you... Patrick is on 25 mg of prednisone right now...He is taking 15 mg in the morning and 10 mg late in the afternoon......
PLEASE! Find out about and Let your kids use EMLA before they have to have IV's or blood taken! A lot of doctors won't suggest it, may not even know about...
Hi Erin - I'm happy to hear that your son's numbers are rising. Rhea get very hungry when she is on prednesilone. I think she is constantly eating or saying...
Hi Rachel! Patrick's Hgb was 11.8 today and prednisone is being lowered to 20 mg on Thursday. Drs are running more tests. They are discussing a different...
Rachel, My little girl Madison is 7 years old and was diagnosed with Evan's when she was almost 5 years old. She has had normal counts now for about 4 months...
... Evan's when she was almost 5 years old. She has had normal counts now for about 4 months after being on 6mp. I am sorry to hear that it did not work for...
Lisa - Rhea, my daughter, was on 6MP for about 15 1/2 months. It seemed to work good in the beginning and then the docs. weren't getting the results they...
Hi Rachel, I hope the stomach x-ray turns out okay on Rhea. Let us know what the results are. Have you asked her doctor about the possiblity of bacterial...
Amy, We took Rhea in yesterday and of course nothing went smoothly. However we did have a better outcome at the lab. This time I put the EMLA on her arm and...
RACHEL....your Dr. said to use METAMUCUL? That is a laxative ...if diarrhea is a problem....I don't think Metamucil is the answer...plus it is fiber...tht...
Dear Debra: Oh, thank you, I loved your response. I'm Rachel's Mother, Kim. I found this web sight and have paid for one years subscription for Rachel for...
Rachel, WHere do you live? I live in Pensacola Florida and we did not have a good experience with the doctors here. We switched to Shands Hospital in...
SEEING THE POSTS TODAY ABOUT BLOOD DRAWS, YES WE USE THE ELAM TOO, ALSO LIKE EVERYWHERE SOME PEOPLE ARE BETTER DRAWING BLOOD THAN OTHERS, AT THE HOSPITAL ...
Betty - May I ask, how long has your son been on CellCept? Does he complain of any side effects? We were told that there are very minimal to no long term...
Hello Rachel, I have been reading your emails on Rhea and my heart goes out to you. My son Teddy was diagnosed at 15 months and at 3 and a half he ended up...
Hi Rachel..I am Madison's grandmother. I just wanted to let you know that you DO NOT have to use the tegraderm to cover the Emla. The tegraderm can stick so...
Rachel - Thank you so much, I'm happy to hear that your son is doing well. I try to stay positive, but some days are harder than others. Rhea had a really...
Rachel, Paul has had Evans for seven years now . He has tried many treatments but he was on Cellcept for probably 2 years and except for the enlarged nodes ...
Having problems with message search?
Offline 
Send Email