PLEASE! Find out about and Let your kids use EMLA before they have to have IV's or blood taken! A lot of doctors won't suggest it, may not even know about it. It is a topical anesthetic you put on before the needle stick...about 45 minutes before. It numbs the area WONDERFULLY! I am a nurse (retired) and worked in oncology. Emla is a cream that you put on the skin in a thick glob and then cover with a tegraderm clear patch,,HOWEVER...the tegraderm doesn't have to be used, and I recommend just putting saran wrap and as little tape as possible to hold it in place...it makes removing it much simpler, because the tegraderm can stick pretty good and that in itself can be painful taking it off. Emla is RX, but you can now buy the same stuff over the counter...not quite as strong, but still works wonderfully! I know...I used it on many of my patients and even on myself when I get blood tests....My
granddaughter has Evans, fought it for over 2 years, and has now had normal blood tests for about 4 months..(she finally was on 6MP for 8 months after NOTHING else seemed to work for her).
She had a terrible time getting all the needle sticks and the EMLA made her treatments so much more bearable! PLEASE! There is so little we can actually do to help our kids thru this terrible disease, but this IS one way that you can help them! Check it out and INSIST to the doctors, lab techs etc. that your child uses it.....it can help ease their fears sooo much. A lot of time the nurses, etc, just don't want to take the time for the Emla to take effect.....but it is YOUR child and you have every right to insist on it.! My heart just goes out to all the kids...big and small and this is certainly one BIG way you can help ease their pain! Debbie...(Nana to Madison/7years old with
Evans.....prayerfully now in COMPLETE remission!)
Hi to everyone, I am new to this group and am looking for other people to talk to. I have done a little bit of looking through the questions which have been...
Hi Rachel! Welcome to this group...I am a fairly new member and check in once in awhile... My son who is 14 1/2, became ill in August 2006. He has hemolytic...
Erin - Thank you for responding, it is much appreciated. I am very sorry to hear about your son. The doctors had my daughter on folic acid shortly after she...
Hi Rachel! Glad to hear back from you... Patrick is on 25 mg of prednisone right now...He is taking 15 mg in the morning and 10 mg late in the afternoon......
PLEASE! Find out about and Let your kids use EMLA before they have to have IV's or blood taken! A lot of doctors won't suggest it, may not even know about...
Hi Erin - I'm happy to hear that your son's numbers are rising. Rhea get very hungry when she is on prednesilone. I think she is constantly eating or saying...
Hi Rachel! Patrick's Hgb was 11.8 today and prednisone is being lowered to 20 mg on Thursday. Drs are running more tests. They are discussing a different...
Rachel, My little girl Madison is 7 years old and was diagnosed with Evan's when she was almost 5 years old. She has had normal counts now for about 4 months...
... Evan's when she was almost 5 years old. She has had normal counts now for about 4 months after being on 6mp. I am sorry to hear that it did not work for...
Lisa - Rhea, my daughter, was on 6MP for about 15 1/2 months. It seemed to work good in the beginning and then the docs. weren't getting the results they...
Hi Rachel, I hope the stomach x-ray turns out okay on Rhea. Let us know what the results are. Have you asked her doctor about the possiblity of bacterial...
Amy, We took Rhea in yesterday and of course nothing went smoothly. However we did have a better outcome at the lab. This time I put the EMLA on her arm and...
RACHEL....your Dr. said to use METAMUCUL? That is a laxative ...if diarrhea is a problem....I don't think Metamucil is the answer...plus it is fiber...tht...
Dear Debra: Oh, thank you, I loved your response. I'm Rachel's Mother, Kim. I found this web sight and have paid for one years subscription for Rachel for...
Rachel, WHere do you live? I live in Pensacola Florida and we did not have a good experience with the doctors here. We switched to Shands Hospital in...
SEEING THE POSTS TODAY ABOUT BLOOD DRAWS, YES WE USE THE ELAM TOO, ALSO LIKE EVERYWHERE SOME PEOPLE ARE BETTER DRAWING BLOOD THAN OTHERS, AT THE HOSPITAL ...
Betty - May I ask, how long has your son been on CellCept? Does he complain of any side effects? We were told that there are very minimal to no long term...
Hello Rachel, I have been reading your emails on Rhea and my heart goes out to you. My son Teddy was diagnosed at 15 months and at 3 and a half he ended up...
Hi Rachel..I am Madison's grandmother. I just wanted to let you know that you DO NOT have to use the tegraderm to cover the Emla. The tegraderm can stick so...
Rachel - Thank you so much, I'm happy to hear that your son is doing well. I try to stay positive, but some days are harder than others. Rhea had a really...
Rachel, Paul has had Evans for seven years now . He has tried many treatments but he was on Cellcept for probably 2 years and except for the enlarged nodes ...