Dear group, I joined this group when last winter it was thought our Jonathan (now age 22 mos) was Evans. He presented first with ITP, then all his blood lines starting having issues. None of the standard treatment for Evans seemed to help...of course! because we found out in June he was Aplastic Anemia. His bone marrow is empty and not making anything. Jonathan does have a bone marrow match for a transplant but the doctors feel it will be very risky for him due to other health stuff. We are trying more drug requiems as a last ditch effort  and then going for transplant maybe Dec.? This is a lovely group and I have prayed for many of you in the past. Dealing with chronic illness is rough on everyone. Bless you all of you. If you are interested you are welcome to join our newsletter (Christian) group listed in email below. You may find it encouraging even .

 

thank you for letting me be a part of this group for these past months!

 

 

Many blessings on your day ,
Julee, bride to Mike
mommy to many God brought through birth and adoption

 

~our newsletter group
http://groups.yahoo.com/group/feserfamilyfriends/

 

~photo album of our family
http://www.PictureTrail.com/gid14926312&pathID=1669274