..the US Government will study rare diseases....when there isn't
enough profit for drug companies to find a cure or treatment for a
disease...cause the amount of money put into the research,
development, and manufacturing of a drug, won't reap back a
profit..but a big loss... This is why there is so many new allergy
medications and erection dysfunction drugs amongst others. There is a
big demand for those drugs. They make money for the drug companies.
The NIH or National Institute of Health, is the US government. They
have/or had an Evans Syndrome study. But since I last looked at
it...I think it is just an ITP study.
To be considered, you must contact the NIH, there is a website... and
then have your medical records transferred for them to review.
--- In EvansSyndrome@yahoogroups.com, Erin Healey <eheals27@...> wrote:
>
> What is an NIH study??
>
> Erin
>
>
> stillermom <andicipa@...> wrote:
> My son was turned down for the NIH study, his platelets
were not low
> enough. (Actually I am glad they were high)... but does anyone know of
> an Evans Study we can participate in?
>
>
>
>
>
>
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