Julie,

I understand your pain. Son diagnosed at roughly same age, and has
had same treatment options. IVIG, Prednisone, Rituxin. The Rituxin
seemed to work on the overall problem, but he immune system lost
it's memory. The resulet is now a weekly in-home infusion of Aventis
product called Vivaglobin. It is subdermal and not a big deal. takes
an hour with no side effects other than a big egg under the skin
which goes away in a few hours. I am not sure if this is the option
your doc is talking about, but so far it is working for us. Problem
is, there aren't many kids that have been on it for a long time, and
there is no timeline. It could be for years that we will need to do
this.

Hope this helps.
Steve



--- In EvansSyndrome@yahoogroups.com, "jakk5858" <jakk5858@...>
wrote:
>
> Hello,
> Our son will be 18 soon he was diagnosed with ITP then Evans
> when he was 8.We have had our share of
> prenisone,IVIG,transfusion,rituxin. you know the drill of the ups
and
> downs of counts. Presently his white count is down and had been
for
> quite awhile we were going to get IVIG for four months nothing
much is
> happening to the white count so his DR. is talking about IVIG for
> another year possibly given at home. Does anyone have any
observations
> on this has anyone ever heard of anything else used to raise white
> counts?Thanks for listening,Julie.....
>