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Reply | Forward Message #4596 of 5561 |
Re: [EvansSyndrome] IVIG

Hello Julie,
 
     Our daughter Rachel who is 17 has had a problem with low white blood cells for going on two years.  She has been giving herself shots four times a week of NEUPOGEN.  It has helped a lot with her white cells in that keep in the low range but we haven't been in the hospital with infections.  We just pray that they white cells come back to at least where she won't have to take shots or as many as she does now.  Hope this helps.
 
Nancy, mother of Rachel w/evans


Mon Jan 15, 2007 11:20 pm

rnm171
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Message #4596 of 5561 |
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I was wondering if anyone has just been using IVIG only for treatment. My daughter has had IVIG on a regular monthly basis for 4 months. She was taking 30...
Pasmida5151@...
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Feb 3, 2000
2:44 am

Hi there, IVIG has made the greatest difference in Katie. Before getting it routinely, she was in the hospital every month. She has been getting it every...
LNALOU@...
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Feb 4, 2000
5:49 am

Thanks to the responses I have gotten in regards to the IVIG. Conner has recieved this treatment in the past when his platlet count was 18,000 back in...
alloyd5
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May 15, 2004
4:46 pm

In a message dated 5/15/04 12:49:01 PM Eastern Daylight Time, alloyd5@... writes: Thanks to the responses I have gotten in regards to the IVIG. Conner ...
lnalou@...
lnalou
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May 15, 2004
5:02 pm

For any of you who use IVIG. There is a new magazine published called "I.G. Living." It's purpose is to provide articles offering insight and support to...
Amy Walsh
smlybly
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Feb 14, 2006
10:55 pm

... thank for thinking of Alex!! he is still doing good on his counts we go back in two weeks for counts we are going to two doctors now, miller childrens...
aamom4ever
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Feb 16, 2006
4:16 am

Amy, Thank you for the information I am going to sign up. Paul continues to feel better this year, but we have not been able to get a plan for his ...
bettanmic@...
bettanmic
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Feb 15, 2006
4:52 pm

Hello, Our son will be 18 soon he was diagnosed with ITP then Evans when he was 8.We have had our share of prenisone,IVIG,transfusion,rituxin. you know the...
jakk5858
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Jan 15, 2007
10:48 pm

Julie, I understand your pain. Son diagnosed at roughly same age, and has had same treatment options. IVIG, Prednisone, Rituxin. The Rituxin seemed to work on...
srcamm
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Jan 17, 2007
4:51 pm

Hello Julie, Our daughter Rachel who is 17 has had a problem with low white blood cells for going on two years. She has been giving herself shots four times...
rnm171@...
rnm171
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Jan 15, 2007
11:25 pm

Hi, My 15-year-old son has had a lot of trouble with low white counts, which put him in the hospital twice this fall for about a week each time, with small...
Wechsler/Brooks
jmdjbw
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Jan 20, 2007
7:46 pm
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