I was a memeber about 3 years ago but with all the demands that Evans
Syndrome has I haven't beable to keep in touch. Just a quick refresher
about my 7 year old son Conner. He was diagnosed feb. 4th 2003 with
Evans. We have been pretty fortunate to keep his blood levels stable
with small doses of prednizone and few blood transfusions.

Conner then started to not respond to anything but the highest dose of
prednizone, so now he is on Cellcept also. We have tried
Prednizone,IVIG, Rotuxin, Immoglobulin, blood transfusions,
cyclosporine, and Cellcept. So if anyone has any questions or comments
about any of these treatments I would love to share experiences with
them.

Happy New Years to all.

Amanda