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Reply | Forward Message #4578 of 5559 |
I am new to this group. My three year old son, Teddy, is having his first
episode in two years.
They have tried two different steroids and IVIG. The prednisone seemed to be
working at very
high doses of 150 and then 100. But this week his hemo counts fell from 11.8 to
9.9 not an
esp. bad number but we are wondering what this could mean and what might happen
now.
Also what treatments others have had success with.

Thanks in advance for any help you can give,

Rachel




Fri Dec 8, 2006 12:06 pm

charleyfritz
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Message #4578 of 5559 |
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I am new to this group. My three year old son, Teddy, is having his first episode in two years. They have tried two different steroids and IVIG. The prednisone...
charleyfritz
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Dec 8, 2006
12:06 pm

My 6 year old daughter was diagnosed 16 months ago. We used Prednisone and had success with that, but only for a few months. Then, her body stopped responding...
lisa shoenfelt
lmshoenfelt
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Dec 8, 2006
2:21 pm

I am curious who the doctor in Boston is, we live just outside Boston and go to Childrens Hospital here. Betty Mom to Paul 19 Evans+...
bettanmic@...
bettanmic
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Dec 8, 2006
2:57 pm

He is Dr. Neufeld and he is at Boston Children's. bettanmic@... wrote: I am curious who the doctor in Boston is, we live just outside Boston and...
lisa shoenfelt
lmshoenfelt
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Dec 8, 2006
4:28 pm

Thank you for your response, we have seen him in the past. Betty...
bettanmic@...
bettanmic
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Dec 8, 2006
4:46 pm
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