Has Alex ever tried vincristine. I know he was on cyclosporine, but I could not remember what else he had tried. I am thinking of you.
Amy
(Aidan almost 5)
aamom4ever <aamom4ever@...> wrote:
i am updating on alex well we are about 9 weeks since our last riutuxon treatment his hemoglobin is stable since we started at 10.8 his platlets are going up and down he is at 56 right now we are still being patient BUT we are in the hospital now for another reason alex has a line infection we are in the hospital on antibiotics this is the first time since he had the line that we have ever had any trouble. any info anybody has ever had with an infection from their central line will be apprectated. they want him to have a full
14 days of the antibiotic since his negetive blood culture. we are also in a new hospital which takes some getting used to we changer from long beach miller childrens hospital to choc orange county we heard great things about dr diane nugent here from dr bussel in new york so we are here the change is hard after 4 years at the other doctor but we have positive thoughts. mindy (mom to alex)
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Mindy, Has Alex ever tried vincristine. I know he was on cyclosporine, but I could not remember what else he had tried. I am thinking of you. Amy (Aidan...
... and he went off the vincristine and stayed on the cyclosporine for awhile longer by itself. he has been on steroids for several years and also has tried...
Mindy, Have you tried vincristine this time for his platelets? Maybe if it worked for his hemoglobin it along with cyclosporine and steroids would work for...
well this is an update on alex he has been doing great since the riutuxon but now we are in the hospital with another line infection! he had a line infection...
My son Julius (age 5) had his lines put in in july 2005 and in November got an infection in the line and because he was done with the vincristine treatments...
well just an update alex had his broviac line removed on friday he is doing great he has just a regular iv until thursday to finish the antibiotic we will go...
hi mindy, just a reminder that it took our ben a full 3 months for rituxan to work for him (we had almost given up hope)- he had platelets less than 10k for 5...
Hi Mindy, That's awesome news! Thanks for keeping us up-to-date. We'll keep Alex in our prayers for continued success with the Rituxan! Debbie (45 w/Evans)...
well we are going home today after 14 days in the hospital for the line infection. we are excited they did one more cbc and his platelets were at 278,000 and...
Hello all, I am writing with an update on Alex. We went to the doctor yesterday for counts and all his counts are still in the normal range since the Riutuxon...
Hello - I just started treatments using Rituxon - I just wanted to get some feedback on how well it worked for others. My normal treatment is Prednisonse...
my 15 year old son went through rituxan treatment 14 months ago. although it took over 3 months to work, he has been fine ever since! good luck, shari (mom to...
Rituxon has worked for me i have had it twice this past time it lasted 26 months and now i have relapsed. I will start next week i think rituxan again to...
Thanks for the update! A 2+ reading on the Coombs test is a mid range reading. The lowest is 1+ and the highest is 3+. This strength is subjective though...
Nicole, As you will find on this site what works for one doesn't for another, my son did not have success with the Rixtuin but others who had it at the same ...
Hi everyone I am updating on alex. Im worried and taking him in today for counts he is not due for another week but his lips look pale to me! I feel so sick...
Mindy, We will be praying for Alex today. Please let us know as soon as you have the results. Grace (Katie 14 with Evans) aamom4ever <aamom4ever@...>...
Mindy, Im so sorry to hear that Alex has to go back. I hope that his counts are ok. Please let me know when you find out. I convinced Madison's doctor not to...
Well my instinct was right! His hemoglobin is at 7! They started him on steroids again i never wanted steroids back in our lives but i dont have alot of choice...
HI Mindy, I'm so sorry that Alex is back on steroids. I know how I dread that happening to Katie. Alex's symptoms were probably not a virus, but were a...
Mindy, We will keep Alex in our thoughts and prayers. Erik too experienced a fever and vomiting when his platelets dropped. Please keep us posted on how he...
Well hello to everyone, I havent posted in some time. My son is alex he is seven and was diagnoised wiht evans at 1 year old. We went for one full year in...
Hi Mindy, I just took some time to pray for Alex. I know exactly what you mean about it feeling like you are dreaming. We have all been there. When Katie...
Hi Mindy. I dont know if you remember me but when my daughter was having a really hard time with the Evan's lsat year, you gave me a lot of help about the...
... sent our address to you at your e-mail address!! Mindy & Alex ... having a really hard time with the Evan's lsat year, you gave me a lot of help about the...
... THANK MADISON SOOOO MUCH FOR THE CARE PACKAGE ALEX WAS JUST SO THRILLED!!! IT HAD JUST THE PERFECT TIMING HE REALLY ENJOYED IT AND AS SOON AS HE IS...
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