Hi spencer,
How are you? How is ur neice doing now/ i hope all is well
for her.~Sharon


>From: "cannonaf" <cannonaf@...>
>Reply-To: EvansSyndrome@yahoogroups.com
>To: EvansSyndrome@yahoogroups.com
>Subject: [EvansSyndrome] Recent Evans Syndrome diagnosis
>Date: Thu, 27 Oct 2005 13:08:55 -0000
>
>My name is Spencer and my 11 year old niece was diagnosed last week
>with Evans Syndrome. She was hospitalized on 10/20/05 (I think), then
>released on 10/22 or 10/23. Early on 10/24 she had horrible headaches
>and my sister and her husband took her to the ER. They treated her,
>did a CT, which returned normal, "stabilized" her, then released her.
>On the way home my niece arrested. My sister, a registered nurse, did
>CPR, while her husband drove back to the hospital. She stayed until
>10/26/05, then was released again. Early this morning, 10/27/04, her
>blood pressure spiked, again, despite BP meds, and she is back in the
>hospital. The literature I find on the web is not very encouraging,
>yet the doctors continue to remain positive about treatment. My niece
>is at Primary Children's Medical Center in Salt Lake City and the
>doctors seem to know of this but they don't seem as concerned as I am
>based on what I've read so far. Am I catastrophizing this? Or am I
>being realistic? Any tips would be appreciated.
>
>Thanks,
>
>Spencer Cannon
>
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