Thank you for your suggestions I am just starting the porcess for SSI and mass Health. There are so many things to be done and not enough time for it all.
I am a school teacher with Evans and I would highly recommend that you find a school that has a program, of some kind, he is interested in. Ask him to at...
Thank you for your suggestions I am just starting the porcess for SSI and mass Health. There are so many things to be done and not enough time for it all. ...
I have a question for you guys. I don't post often, and have only dealt with this whole Evans issue with my son since August 06. I guess maybe I'm over...
Angie: I read your note and understand the concerns you have regarding your son's health and exposure to illnesses.... My son recently turned 14 and was...
Hi Erin, I just wanted to comment regarding Fifth Disease, which is also known as "slapped cheek" disease because the cheeks normally turn red. This is...
Debbie: I enjoyed your note....you have had your hands full also I see... You are the same age as me... Patrick's school nurse advised me she didn't understand...
Hi Erin, Wow...you have definitely faced many challenges. I keep telling my friends its not age that creates wrinkles and gray hair...it's raising children!...
Thanks for all the advice. Hunter is only on an IEP due to his Evans. He normally goes for counts or doctor's visits weekly, or when his platelets are low he...
Hi Angie--- I am a 43 yr old just diagnosed with evans last September. I have noticed and so have other people that when my red blood cell count is up---that...
As someone else mentioned, my son's hematologists told us way back that neutropenic people are most at risk from the bacteria living in their own bodies. It's...
It all depends on the situation. I was homeschooled in 1st grade because of dangerously low counts, plus the whole playground thing frightened my mom. Horsing...
Angie, I agree with you 100%. My daughter has had Evan's since July 2005. Her first hemotologist had this same attitude and wanted her in school and even...
Angie, I understand your concern and fear. My 8 year old daughter was severely neutropenic(100-200ANC),for most of the winter.We stayed away from malls and...
Hi Angie, My son Nathan has had Evans since 2001. He is 12 years old now and about to start the bigger school here in Scotland this coming August. He's had low...
Angie, I sent my son to school when possible, even with low platelets, I think it is very natural to be overprotective, but probably not best for your child....
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