EvansSyndrome : Message: rituxan

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Message #3529 of 5554 |

question:

anyone with rituxan experience - have you done
anything about immune replacement while on rituxan
such IVIG?

My son Ben, had his first infusion yesterday and we
were wondering how safe he will be from infection as
we proceed.

Thanks,
Shari (mom to Ben 14 w/ evans)

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Fri Feb 4, 2005 11:34 am

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Shari Miller <sharim61@...>

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Message #3529 of 5554 |

Expand Messages	Author	Sort by Date
question: anyone with rituxan experience - have you done anything about immune replacement while on rituxan such IVIG? My son Ben, had his first infusion...	Shari Miller sharim61	Feb 4, 2005 11:34 am
my husband was on rituxin about 2 years ago and that is what FINALLY kicked him back into remission. we had tried everything else, prednizone, blood...	Kimberly Patrick kcpatrick26	Feb 4, 2005 12:46 pm
Aidan had four doses of Rituxan last year. At that time he was getting pentamidine monthly and was taking diflucan to help prevent bacterial and fungal...	Amy Walsh smlybly	Feb 5, 2005 3:13 am
Thank you Amy! That is great info. Did you repeat the rituxan after the 10 months or did you try something else? shari (mom to Ben 14 w/evans) ... ...	Shari Miller sharim61	Feb 5, 2005 12:38 pm
Shari, After Aidan's hemoglobin dropped again he actually responded well to high dose steroids. At the time of Rituxan all three of Aidan't counts were low...	Amy Walsh smlybly	Feb 7, 2005 11:09 pm
Thank you Amy! Your info is so important to the rest of us. I am glad that you have found something that works (for now). Ben was on cellcept for almost 4 ...	Shari Miller sharim61	Feb 8, 2005 1:20 am
I recall someone posting a while back about a trial conducted in Boston (I think) with rituxan and evans patients. Is this right and is there a doctor I can ...	Shari Miller sharim61	Feb 7, 2005 1:07 pm
Yes, my son was invovled in that study at Childrens Hospital in Boston, we did not have any good results, but one of the girls did. The study was funded by...	bettanmic@... bettanmic	Feb 7, 2005 2:50 pm
Rituxan works for some evans patients because it destroys immune cells called B cells that are responsible for making antibodies (and autoantibodies). The...	Amy Walsh smlybly	Jul 20, 2009 12:22 am
... While not to be negative in anyway because we know all of our immune systems are different i sometimes wonder if the rituxin my son recieved several years...	jakk5858	Jul 20, 2009 1:06 am

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