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BMT info and questions   Message List  
Reply | Forward Message #2950 of 5561 |
Re: [EvansSyndrome] BMT info and questions

Hi jen have you tred cyclosporine and predison , I know that vinacrystine and that did well for her also some have tryed rutuxin  (srry fro the miss spelled words..  My prayers for her and you  GOD BLESS  jean

Jennifer Barker <crazyone32091@...> wrote:

Hello all

Brittany is still in the hospital. We have started week three this time. The doctors have mentioned the possibility of a bone marrow transplant as our next resort. We have done two plasma transplants and 16 blood transfusions in the last month. yet still her blood counts drop nightly. We have run out of options. My question is has anyone had this done and if so how did things turn out. Also what are the risks for the patient and the donor. I am at a loss for words anymore as I don't know what to do for her anymore. Since February she has only been home three weeks! We thought that she was going to come home soon but every time we think that something else happens! The other day her Platelets were 139,000, they dropped over night to 33,00 then the next night to 25,000, it seems to be a never ending downward spiral! Any help or info would greatly be appreciated. Thank you all for your help and prayers!

Jenn


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Fri May 14, 2004 12:34 am

jworrell98
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Message #2950 of 5561 |
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Hello all Brittany is still in the hospital. We have started week three this time. The doctors have mentioned the possibility of a bone marrow transplant as...
Jennifer Barker
crazyone32091
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May 13, 2004
6:44 pm

Hey Jenn: How ironic is this; Danielle is going to see Dr. Skoda-Smith and Dr. Hungry at Shands the first of June to explore stem cell transplant. Therefore I...
Robin L. Brown
R_L_Brown
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May 13, 2004
7:04 pm

Hi jen have you tred cyclosporine and predison , I know that vinacrystine and that did well for her also some have tryed rutuxin (srry fro the miss spelled...
j worrell
jworrell98
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May 14, 2004
12:34 am

you may also want to discuss immune-suppressants such as cellcept and imuran - works miracles for Ben... Shari (mom to Ben 13 w/ evans) ... ...
Shari Miller
sharim61
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May 14, 2004
11:54 am

Hi, I'm from San Antonio, Texas. If this e-mail gets through I will e-mail more. I do know good things and doctors about BMT ith Evans. Jo Ann Lewis...
RICHPHARM@...
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May 14, 2004
2:46 am

In a message dated 5/13/04 2:45:59 PM Eastern Daylight Time, crazyone32091@... writes: Brittany is still in the hospital. We have started week three this...
lnalou@...
lnalou
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May 14, 2004
3:04 pm

Hey Robin, Charlie said that you tried to reach me the other day. I have been a bit busy but will be off all day tomorrow. Brittany was being released from the...
Jennifer Barker
crazyone32091
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May 17, 2004
7:02 pm

We have done all of the above...lol...the prednisone and cyclosporine she was on for approx. 6 years!!! The rutoxin has been tried as well as...
Jennifer Barker
crazyone32091
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May 17, 2004
7:05 pm
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