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Re: Vincristine   Message List  
Reply | Forward Message #2265 of 5561 |
Re: [EvansSyndrome] Vincristine

Hello Robin,

Our daughter Rachel had Vincristine about 3 months ago, she had tired
rituxin but it did nothing. Rachel lost her hair, which is starting to grow
now, she had jaw pain and back pain also. Rachel is 13, she also had a liver
transplant when she was 9 months old. While she was getting the Vincristine she
was also getting anitbiotics for an infection and it became toxicand shut down
her kidneys so we don't know if the back pain was from this or the Vincristine.
She only received two of the four doses of the Vincristine because of the kidney
failure but her blood counts are doing very well. The kidney failure had
nothing to do with the Vincristine. And yes this site really is a blessing for
us who thought we were alone!

Good luck and God bless
Nancy & Randy




Thu Jun 5, 2003 5:46 pm

rnm171
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Message #2265 of 5561 |
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I was wondering what type of drug Vincristine is. I haven't heard of it before until I became a member of this group. My family has been treated with...
Warrenmdtc@...
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Jul 23, 2001
2:22 am

Danna, Vincristine is a drug very commonly used in Leukemia treatment. Ben did not respond to the IVIG so we're trying this. V. is a little more aggressive. So...
Mark Miller
markemiller@...
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Jul 23, 2001
1:49 pm

Here is a good description of Vincristine. http://my.webmd.com/content/asset/uspdi.202594 It worked better than anything else for me. My platelet counts went...
b wishin
blwishin@...
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Jul 24, 2001
4:41 am

Here is a good description of Vincristine. http://my.webmd.com/content/asset/uspdi.202594 It worked better than anything else for me. My platelet counts went...
b wishin
blwishin@...
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Jul 24, 2001
5:12 am

Our daughter, Katie, is 4 years old now, and she was diagnosed with Evans Syndrome when she was 23 months old. I realize everyone is different, but we just...
Katie Chang
katie@...
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Jul 25, 2001
2:02 am

Great news about Katie! Interesting that you combine Vincristine and IVIG. Emla is great stuff Ben's blood is still okay after 9 days from Vincristine...
Mark Miller
markemiller@...
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Jul 25, 2001
2:21 pm

I am happy to hear that Katie is doing so well and that you were able to find a treatment that proved effective for her. That is the biggest thing with this...
Warrenmdtc@...
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Jul 25, 2001
2:07 am

I also was put on septra when I was in the hospital...this is the first time I've heard of anyone else being treated with this drug, I understand it is really...
Emily Gruszka
emilygruszka@...
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Aug 8, 2001
8:51 pm

Good Afternoon Everyone: I am so happy to have found this group. I really felt all alone just a month ago, and now I have all of you. Danielle got her port...
R_L_Brown
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Jun 5, 2003
3:53 pm

Hi Robin, My son Ben has battled Evans for about 2 years now. Shari, my wife, is the detail one of our team but I'll take a stab. We wrestled unsuccessfully...
Mark Miller
millerusr
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Jun 5, 2003
6:29 pm

Hi Mark, Thank you so much for your response. I have passed Ben's email address on to Danielle, I'm not sure if she'll email him or not but it's nice to know...
R_L_Brown
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Jun 5, 2003
9:59 pm

Hello Robin, Our daughter Rachel had Vincristine about 3 months ago, she had tired rituxin but it did nothing. Rachel lost her hair, which is starting to grow...
rnm171@...
rnm171
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Jun 5, 2003
5:46 pm

Everytime I check this board I am more and more at ease with Danielle's condition and progress. It is so incredibly comforting to have an outlet. Our lives...
R_L_Brown
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Jun 5, 2003
10:25 pm
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