Hello Group,

This weekend my son Paul turned 16 !!! He felt good this week and we had
a wonderful party with friends and family. As an added plus he felt good this
week as well, this past week his platelts were 3,000 and he is going to have
the IVIG every two weeks, we did the high dose steriods for 3 days (100MG)
and he didn't sleep for 3 days and of course I didn't either. We are still
waiting for the clinical trial for the Rituximab (which how is that differnet
from
Rituxin ?) at Childrens Hospital here in Boston soon hopefully in the next
month or so.

It wasn't a good winter for us, but yesterday was a wonderful day and I
am remembering to enjoy the good days, I am thankful for my family and
friends ( including all of you)


Betty (mom to Paul -- now 16!! )