Jean,

Thank you for your return letter on nuetropenia.  I am sorry to hear your daughter has been diagnosed with Evans Syndrome.  If you have any questions or just need support, you have found the right site.  Most of the participants on this site are either parents or patients of Evans Syndrome.  Has your daughter been staying in the hospital since december or does she receive out patient care?  Chemotherapy is one of the many treatments for Evans Syndrome and as you will probably read every patient with Evans responds differently to all kinds of treatment.  I found it helpful to read other's experiences when Aidan was first diagnosed so I am sharing his story. 

My son, Aidan, was first diagnosed with Autoimmune Hemolytic anemia at 10 mo.  He was in intensive care and treated with steroids.  His hemoglobin rose in a few days and we were sent home preparing to slowly lower his dose until he was completley off the medicine.  At 15 mo. he recieved routine immunizations and 2 weeks later his platelets dropped.  This is when he was diagnosed with Evans.  Aidan was also hospitalized last April with platelets at 1,000 and treated with steroids, cyclosporine, and vincristine at that time.  We eventually managed to wean him from the steroids and keep him on low doses of cyclosporine.  His coombs had turned from positive to negative in the fall and except for a few dips in white blood cells his counts remained very high.  I was hoping we were on our way to remission.  Unfortunately, last week at his monthly appointment his platelets were at 15,000 and the coombs is again positive.  So we are back on steroids and hoping this time is remedied quicker than last.  Aidan is now 2 years old and a very happy little boy, right now, he doesn't even mind medicine and doctor visits although I expect that may change with time.=)

Hang in there and God Bless. Amy (Aidan 2 with Evans)

 j <jworrell98@...> wrote:

Hi.
My name is jean and I have a child that has been in the hospital
since dec 02. she is at this time having in/out treatment, Kemo is
the latest treatment , she has ITP and Evans Syndrome and some animia
promblem. I was trying to find out anything on this evans syndrome.
ITP is low blood platelets, she went into the hosp with only
2thousand and you should have any where between 150 to 450 thousand
platelets,. any help on this would be greatfull..  thanks and GOD
BLESs  jean



Your use of Yahoo! Groups is subject to the Yahoo! Terms of Servi