--- In EvansSyndrome@yahoogroups.com, "smlybly <smlybly@y...>"
<smlybly@y...> wrote:
> Hello everyone-
> Aidan's wbc(1.5) and ANC(270) were low again at his appointment on
> Thursday. The doctor is taking no action, just warned us against
> watching for infection. I was wondering why it seems that more
> urgent action is taken for low platelets and hemoglobin then
> wbc/nuetrophils? Not that I wish for him to be put back on
steroids
> or raise doses of Cyclosporine. Does anyone have experience with
wbc
> levels raising by themselves? It is a question I did not think to
> ask the doctor.
>
> Also, we are expecting our second child this June and are
considering
> storing the baby's umbilical cord blood. I have heard that it is a
> possible treatment for Evans. Does anyone have any experience or
> input?
> Hi. I know that you said that you didn't want to go back on
steriods but that helps with the WBC. my child whom has ITP (low
blood platlets)is taking steriods her WBC at this time is 2.2she is
also on cyclosporine this helps the ammune systems. the reason the
soctors are worried with low platelets is cause the child can bleed
to death in a matter of seconds. I know my child would have 1 and 1/2
hours nose bleed at a time. I am not sur e of you child medical
condition, but if you would say hay doc please explain to me
this ???? and see what answer is given, the first part of healing is
trusting a doctor and knowing that you will get the answer and if the
doc doesn't know the answer then they should find out. Like I said I
am not sure of the condition your child has. But I will pray for your
family never give up.. GOD is there.. good luck on new babie., GOD
BLESS jean
> Amy (Aidan, 2yr)