Nancy and Randy,
Our son, Ben (12) was diagnosed with evans 2 years
ago. We have seen Dr. Bussell a couple of times as a
consultant and his primary hemotologist is in contact
with him. Ben did the IVIGs, high dose steroids,
vincristine, etc non of which helped him. What has
worked for him is cellcept and imuran (both are
immuno-suppressants). If Rituxan did not work for
Rachel, this may not be the answer either. Bussell is
knowledgeable and it is worth the trip to see him.

Good luck and we are all praying for you.

Shari

--- "rnm171 <rnm171@...>" <rnm171@...> wrote:
> Hi Shelly,
>
> The Doctor which they want Rachel to see is Dr.
> Busell. I tried
> to look up info on him on the Cornell web site but
> there wasn't too
> much. We live in Northeast PA, Rachel was
> transplanted at Children's
> Hospital of Philadelphia, in May 2002 Rachel was at
> CHOP with this
> problem and was being seen by Dr. Gill. We read
> that Dr. Gill was
> seeing a patient named Micha, who was consulted by
> Dr. Busell. Would
> this be your son? We see that there are a lot of
> different drugs
> that are being used and there is none that work for
> everyone, has
> anyone used both Vincristine and Cytoxan at the same
> time? What
> worked for Micha?
>
> Thanks,
> Nancy & Randy
>
>


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