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EvansSyndrome · The Evans Syndrome mailing list is for the purpose of sharing information and support to those individuals who have or know som
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3 New Messages - New Questions

Description

The Evans Syndrome mailing list is for the purpose of sharing information and support to those individuals who have or know someone with Evans Syndrome. (Thrombocytopenia, hemolytic anemia and neutropenia.) This list is coordinated by the Evans Syndrome Research and Support Group. Our goal is to continue to gather all of the information we can so that we can stimulate further interest and research by the medical community.

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Re: alex
MINDY, sorry to hear of Alex's drop, that change is never easy. I was interested to hear of the new injection treatment Nplate and please keep us posted . good
Posted - Thu Jul 9, 2009 12:52 am
 bettanmic@...
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Re: alex
  Hi..Sorry to hear about Alex.  My granddaughter Madison is Alex's age(diagnosed with ITP/Evan's Syndrome one week before her 5th birthday) and we have
Posted - Thu Jul 9, 2009 12:09 am
 randy or debbie shoen...
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alex
hello everyone this is mindy, alex's mom havent been on in quite awhile Alex is having his famous summer drop just like clockwork his platlets are at 4,000 the
Posted - Wed Jul 8, 2009 11:14 pm
 aamom4ever
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Re: Patrick-7 months post splenectomy
Gabby was at a platelet count of 1k right before we started the rituximab. They wanted me to give her steriods again and I declined. I am so happy. The
Posted - Mon Jun 22, 2009 1:15 am
 cindy sherwood
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Re: Patrick-7 months post splenectomy
I am glad to hear that Gabby is going well, my son Paul now 22, has been thru many things with his Evans as well as other health and learning issues. BUT he
Posted - Tue Jun 16, 2009 12:16 pm
 bettanmic@...
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 11 58 32 16 12 3
2008 1 32 37 22 3 5 1 57 29 1 42
2007 31 33 63 63 42 13 14 9 77 44 24 15
2006 38 50 41 57 42 98 34 108 65 18 9 6
2005 14 83 23 17 40 85 42 64 53 46 13 35
2004 46 35 84 81 78 109 58 56 62 73 52 80
2003 93 21 14 26 126 89 61 44 57 59 68 57
2002 64 43 9 99 107 25 31 33 28 80 25 71
2001 41 69 69 51 57 64 72 132 170 83 218 64
2000 12 17 17 2 26 38 10 12 46 36 28
1999 3 8 2 1 8 2
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