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Thanks for your reply. We are getting to the 4 month mark with some improvement. The doctors are talking about surgery and we are getting worried. He has movement in his shoulder but nothing in the bicep. Have you talked with anyone that has had successful surgery?
Thanks
Jeff
----- Original Message -----From: shana robertsonSent: Monday, August 10, 2009 7:13 AMSubject: Re: [Erbs_Palsy_Support] Re: MY SON
Yes! when she was 6 months old,the Md wanted to do a tendon release. I asked him,If we did the surgery , what level of function would she regain? He told me it would be a 50%-50% chance. We did not do the surgery. We went bak to the same Md about a year later for follow-up. He was impressed om how much her strenght and movement had improved . I am not suggesting not to listen to your MD. This was a decision me and my family prayed about.
--- On Fri, 8/7/09, jeff1736@sbcglobal.net <jeff1736@sbcglobal. wrote:net>
From: jeff1736@sbcglobal.net <jeff1736@sbcglobal. net>
Subject: [Erbs_Palsy_Support] Re: MY SON
To: Erbs_Palsy_Support@yahoogroups. com
Date: Friday, August 7, 2009, 10:17 PM
--- In Erbs_Palsy_Support@ yahoogroups. com, "srra06" <srra06@...> wrote:
>
> --- In Erbs_Palsy_Support@ yahoogroups. com, "nikhold" <nikhold@> wrote:
> >
> > HI IM SO WORRIED ABOUT MY 2 MONTH OLD. HE WAS BORN WITH ERBS PALSY. HE RECIEVES BIRTH TO THREE, WHICH IS PT, AND HE SEES A SPECIALIST. HE IS NOW GOING TO BE RECIEVING OT. SINCE BIRTH HE HAS REGAINED SOME MOVEMENT , HE CAN PUSH DOWN WITH HIS ARM AND WITH SOME SUPPORT HE CAN MOVE HIS ELBOW SLIGHTLY, HIS HAND IS TURNED COMPLETELY OUTWARD AND IS DIFFICULT FOR ME TO DO EXERCISES ON IT DUE TO IT BEING STUCK IN THAT POSITION, I JUST WOULD LIKE TO HAVE SOMEONE WITH A CHILD OF THE SAME INJURY TO TELL ME IF POSSIBLE HOW THEIR CHILD IS, AND HOW THEY ARE COPING. THANX
> >
> Hi!Mydaughter is 4yrs old,now. She was born withRB'S Palsy. When she was born she could not move her lt arm, it was like she had a stroke. We went through OT and PT until our INS. started giving us problems, then we heard about early interventions. A therapist came to the house 2x's a week until the age of 3. She is no longer receiving therapy,we do excersises at home. Shecan move her arm,hand and fingers with slight limitations. She is unable to put her hand over her head without help of the other hand. She can't hold her palm side up. We have been through a lot over the past four years, and I know we have a lot more to endure. We are going to take one day at a time and keep on praying that she will, one day gain the most use as possible. She is very energetic and smart. She knew how to tie her shoe at the age of 2yrs old! I know very well what you and your family are going through. Continue to pray and ask the doctors and therapist alot of questions. My goal is to get a support group in our area, because alot of people are not aware of ERB'S PALSY. I have been a NURSE for 11yrs,and had not heard of it until my daughter was born. Once again may GOD BLESS YOU AND YOUR FAMILY!!!
>
Was surgery ever an option for you?
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