--- In Erbs_Palsy_Support@yahoogroups.com, "nikhold" <nikhold@...> wrote:
>
> HI IM SO WORRIED ABOUT MY 2 MONTH OLD. HE WAS BORN WITH ERBS PALSY. HE
RECIEVES BIRTH TO THREE, WHICH IS PT, AND HE SEES A SPECIALIST. HE IS NOW GOING
TO BE RECIEVING OT. SINCE BIRTH HE HAS REGAINED SOME MOVEMENT , HE CAN PUSH DOWN
WITH HIS ARM AND WITH SOME SUPPORT HE CAN MOVE HIS ELBOW SLIGHTLY, HIS HAND IS
TURNED COMPLETELY OUTWARD AND IS DIFFICULT FOR ME TO DO EXERCISES ON IT DUE TO
IT BEING STUCK IN THAT POSITION, I JUST WOULD LIKE TO HAVE SOMEONE WITH A CHILD
OF THE SAME INJURY TO TELL ME IF POSSIBLE HOW THEIR CHILD IS, AND HOW THEY ARE
COPING. THANX
>
Hi!Mydaughter is 4yrs old,now. She was born withRB'S Palsy. When she was born
she could not move her lt arm, it was like she had a stroke. We went through OT
and PT until our INS. started giving us problems, then we heard about early
interventions. A therapist came to the house 2x's a week until the age of 3. She
is no longer receiving therapy,we do excersises at home. Shecan move her
arm,hand and fingers with slight limitations. She is unable to put her hand over
her head without help of the other hand. She can't hold her palm side up. We
have been through a lot over the past four years, and I know we have a lot more
to endure. We are going to take one day at a time and keep on praying that she
will, one day gain the most use as possible. She is very energetic and smart.
She knew how to tie her shoe at the age of 2yrs old! I know very well what you
and your family are going through. Continue to pray and ask the doctors and
therapist alot of questions. My goal is to get a support group in our area,
because alot of people are not aware of ERB'S PALSY. I have been a NURSE for
11yrs,and had not heard of it until my daughter was born. Once again may GOD
BLESS YOU AND YOUR FAMILY!!!